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I heard it on the radio: supporting Pacific family carers through the development of culturally appropriate resources, a descriptive qualitative study.
- Source :
- Progress in Palliative Care; Jun2021, Vol. 29 Issue 3, p156-159, 4p
- Publication Year :
- 2021
-
Abstract
- New public health approaches to palliative care highlight the role of communities in care, yet there is little evidence of studies on community-led initiatives in the palliative care context. Therefore, the aim of this study, which took place in Auckland, New Zealand, was to (1) explore Pacific family carers' views on what they need to feel supported as they care for older family members at the end of life and (2) to devise a resource that reflects their views that may be used to raise community awareness about these needs. This was achieved using a Participatory Action Research (PAR) framework in which a focus group was carried out and a work group formed to implement the focus group's recommendations that were informed by a thematic analysis of the focus group data. The analysis resulted in the foregrounding of four themes, with the focus of this paper being on the 4th theme, the centrality of spirituality for a group of Pacific caregivers. This emphasis was chosen due to it being an underexplored topic in the palliative care literature. Co-creating resources based on research with community members allows for the development of tailored approaches of significance to that community, in this instance, a music video. [ABSTRACT FROM AUTHOR]
- Subjects :
- SERVICES for caregivers
CULTURE
CAREGIVER attitudes
FOCUS groups
SPIRITUALITY
RESEARCH methodology
FAMILIES
COMMUNITIES
HUMANITY
QUALITATIVE research
HUMAN services programs
CONCEPTUAL structures
CULTURAL competence
ACTION research
NEED (Psychology)
NEEDS assessment
THEMATIC analysis
MUSIC
PALLIATIVE treatment
SPIRITUAL care (Medical care)
VIDEO recording
Subjects
Details
- Language :
- English
- ISSN :
- 09699260
- Volume :
- 29
- Issue :
- 3
- Database :
- Complementary Index
- Journal :
- Progress in Palliative Care
- Publication Type :
- Academic Journal
- Accession number :
- 150428213
- Full Text :
- https://doi.org/10.1080/09699260.2020.1841876