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WHOSE HEALTH RECORD? A COMPARISON OF PATIENT RIGHTS UNDER NATIONAL ELECTRONIC HEALTH RECORD (NEHR) REGULATIONS IN EUROPE AND ASIA-PACIFIC JURISDICTIONS.
- Source :
- Singapore Journal of Legal Studies; Mar2021, p56-75, 20p
- Publication Year :
- 2021
-
Abstract
- In this paper, we compare four patient rights regarding data stored in NEHRs under nine European and Asia-Pacific jurisdictions. We aim to ascertain whether the success and failure of NEHR implementations could be attributable to differences in patient rights. We note that while there is a convergence of access controls, there is a divergence with respect to controlling third-party access and modifying patient data. Analysing these divergences through four bioethical principles defined by Beauchamp and Childress, we find claims of patient empowerment mask a neoliberal perspective of outsourcing responsibility to patients. Likewise, refusing sufficient granular control can contribute to patient mistrust. We argue that it is important to conceptualise NEHRs as a public good and design regulatory frameworks accordingly. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 02182173
- Database :
- Complementary Index
- Journal :
- Singapore Journal of Legal Studies
- Publication Type :
- Academic Journal
- Accession number :
- 150976454