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Patient and public involvement in care home research: Reflections on the how and why of involving patient and public involvement partners in qualitative data analysis and interpretation.
- Source :
- Health Expectations; Aug2021, Vol. 24 Issue 4, p1349-1356, 8p
- Publication Year :
- 2021
-
Abstract
- Background: There is limited evidence for the impact of involving patients and the public (PPI) in health research. Descriptions of the PPI process are seldom included in publications, particularly data analysis, yet an understanding of processes and impacts of PPI is essential if its contribution to research is to be evaluated. Objective: To describe the 'how' of PPI in qualitative data analysis and critically reflect on potential impact. Methods: We focus on the development and critical reflection of our step‐by‐step approach to collaborative qualitative data analysis (through a series of analysis workshops) in a specific care home study, and our long‐term engagement model with patients and the public (termed PPI partners). Results: An open access PPI group, with multiple events over time, sustained broad interest in care home research. Recordings of interview clips, role‐play of interview excerpts and written theme summaries were used in workshops to facilitate PPI partner engagement with data analysis in a specific study. PPI resulted in changes to data interpretation and was perceived to make the research process accessible. We reflect on the challenge of judging the benefits of PPI and presenting PPI in research publications for critical commentary. Conclusions: Patient and public involvement partners who are actively engaged with data analysis can positively influence research studies. However, guidance for researchers is needed on approaches to PPI, including appropriate levels and methods for evaluation. Without more systematic approaches, we argue that it is impossible to know whether PPI represents good use of resources and is generating a real impact. [ABSTRACT FROM AUTHOR]
- Subjects :
- PATIENT participation
HUMAN research subjects
FOCUS groups
INTERVIEWING
PRIMARY health care
QUALITATIVE research
INFORMED consent (Medical law)
RESIDENTIAL care
RESEARCH funding
DATA analysis
THEMATIC analysis
MEDICAL research
REFLECTION (Philosophy)
LONG-term health care
ADULT education workshops
Subjects
Details
- Language :
- English
- ISSN :
- 13696513
- Volume :
- 24
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Health Expectations
- Publication Type :
- Academic Journal
- Accession number :
- 151957738
- Full Text :
- https://doi.org/10.1111/hex.13269