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Living with Parkinson's disease: disease and medication experiences of patients and caregivers.
- Source :
- International Journal of Qualitative Studies on Health & Well-Being; Dec2022, Vol. 17 Issue 1, p1-11, 11p
- Publication Year :
- 2022
-
Abstract
- Symptoms and medication use in patients with Parkinson's disease (PD) affect the quality of life of patients and caregivers, yet prior research seldom focused on their experiences with medications. This study explored comprehensive living and medication experience from patients with PD and their caregivers. Patients diagnosed with PD for ≥2 years, with or without their caregivers, were recruited from an outpatient clinic in Taiwan. Semi-structured in-depth interviews were conducted based on the Common Sense Model. A qualitative content analysis was used to identify salient themes from verbatim transcripts. In total, 15 patients and eight caregivers were interviewed. Five themes were derived: (1) symptoms and help-seeking behaviours before a diagnosis, (2) emotional impacts and life adaptations after a PD diagnosis, (3) life affected by medications, (4) experiences of caregivers in taking care of PD patients, and (5) communication between doctors and patients. Patients frequently adjusted their daily schedules to live with PD and the medication side effects. Caregivers struggle to overcome caring burdens and to stay positive to support patients. More attention on providing medication information, mental support, and communication between stakeholders is needed to improve the quality of life of patients and caregivers. [ABSTRACT FROM AUTHOR]
- Subjects :
- DRUG therapy for Parkinson's disease
CAREGIVER attitudes
THERAPEUTICS
SOCIAL support
ATTITUDE (Psychology)
RESEARCH methodology
PHYSICIAN-patient relations
INTERVIEWING
HELP-seeking behavior
ACTIVITIES of daily living
BURDEN of care
PATIENTS' attitudes
ATTITUDES toward illness
EXPERIENCE
QUALITATIVE research
PARKINSON'S disease
COMMUNICATION
PATIENT-family relations
QUALITY of life
RESEARCH funding
DESCRIPTIVE statistics
DRUGS
SUPPORT groups
PSYCHOLOGICAL adaptation
CONTENT analysis
EMPIRICAL research
DATA analysis software
PATIENT compliance
SYMPTOMS
Subjects
Details
- Language :
- English
- ISSN :
- 17482623
- Volume :
- 17
- Issue :
- 1
- Database :
- Complementary Index
- Journal :
- International Journal of Qualitative Studies on Health & Well-Being
- Publication Type :
- Academic Journal
- Accession number :
- 160259703
- Full Text :
- https://doi.org/10.1080/17482631.2021.2018769