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Tips for health care providers on talking with patients who have intellectual and developmental disabilities about COVID-19.
- Source :
- Journal of Communication in Healthcare; Dec2022, Vol. 15 Issue 4, p324-328, 5p, 1 Chart
- Publication Year :
- 2022
-
Abstract
- One in four American adults reports having at least one disability. The COVID-19 pandemic has disproportionately impacted people with disabilities and widened already-existing health disparities and inequities. For many people with intellectual and developmental disabilities (IDD), these disparities are compounded by literacy limitations that make it challenging to access, understand, and act upon critical COVID-19 prevention information. Using a design thinking framework, we conducted interviews with 27 caregivers of adults with IDD who also have extreme low literacy (ELL) to assess COVID-19 information needs and recommendations for how health care providers could best provide COVID-19 information. Based on our findings, we developed a draft tip sheet to help health care providers communicate with adults with IDD/ELL about COVID-19. We then tested the tip sheet with six health care providers via a focus group discussion. We refined and finalized the tip sheet based on our focus group findings. Caregivers noted the importance of visual aids, repetition, empathy and addressing the person with IDD/ELL directly when discussing COVID-19. Many health care providers indicated that the tip sheet would be most helpful for those with limited experience with patients with IDD/ELL and specific instructions for implementing the tips would be important. We developed an evidence-informed tip sheet to facilitate communication between health care providers and adults with IDD/ELL and their caregivers, particularly around COVID-19. [ABSTRACT FROM AUTHOR]
- Subjects :
- COVID-19
MEDICINE information services
CAREGIVERS
FOCUS groups
EMPATHY
RESEARCH methodology
ATTITUDES of medical personnel
DEVELOPMENTAL disabilities
INTERVIEWING
HEALTH information services
HEALTH literacy
CONCEPTUAL structures
COMMUNICATION
COMMUNICATION devices for people with disabilities
RESEARCH funding
PATIENT-professional relations
PEOPLE with intellectual disabilities
PEOPLE with disabilities
INFORMATION needs
THEMATIC analysis
Subjects
Details
- Language :
- English
- ISSN :
- 17538068
- Volume :
- 15
- Issue :
- 4
- Database :
- Complementary Index
- Journal :
- Journal of Communication in Healthcare
- Publication Type :
- Academic Journal
- Accession number :
- 160848738
- Full Text :
- https://doi.org/10.1080/17538068.2022.2132011