Cohort Profile: The National Institute for Health Research Health Informatics Collaborative: Hepatitis B Virus (NIHR HIC HBV) research dataset.

To avoid submitting duplication of records to the lead centre, each Trust is responsible for locally maintaining a link between the patient's local identifier and the anonymous study identifier used in the dataset.[14] The central data repository is based on a secure data access platform and only authorized personnel are permitted to access data. Key Features The National Institute for Health Research (NIHR) Health Informatics Collaborative (HIC) has established a cohort of individuals with chronic hepatitis B virus (HBV) infection in secondary care in the UK, providing a resource for translational research. We are unable to capture the retrospective data that might be stored in a different Trust for patients even when data from this Trust are added into the dataset, as it is not possible to map patients between Trusts within the dataset due to anonymization. The exclusion criteria were: (i) patients without records of demographics or (ii) patients without mandated laboratory data (Supplementary Tables S2, S3, available as Supplementary data at I IJE i online) in the EPR systems (Supplementary Figure S1, available as Supplementary data at I IJE i online). [Extracted from the article]