Commentary on my personal experience of patient and public involvement in the TOPSY trial.

On the other hand, the role of PPI on the TOPSY Trial was easily assimilated into my normal work routine as a home based full-time carer. Gradually over the next few months, some aspects of my role as a PPI representative became a little clearer with lots of guidance by Carol and then also the trial manager. Keywords: PPI; RCT; Lessons learned EN PPI RCT Lessons learned 1 3 3 03/28/23 20230325 NES 230325 Background to commentary Patient and public involvement (PPI) in research is now widely expected and encouraged at all stages of the research cycle. [Extracted from the article]