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Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study.
- Source :
- Children; Oct2023, Vol. 10 Issue 10, p1604, 18p
- Publication Year :
- 2023
-
Abstract
- Background: Collecting data using paediatric health-related quality of life (HRQoL) instruments is complex, and there is a paucity of evidence regarding the comparative performance of paediatric HRQoL instruments. The Australian Paediatric Multi-Instrument Comparison (P-MIC) study was conducted to address this paucity of evidence. This study aims to understand the (1) feasibility of collecting data using paediatric HRQoL instruments in a research setting and (2) acceptability and feasibility for children and their caregivers to complete common paediatric HRQoL instruments using data from the Australian P-MIC study. Methods: Data were from children aged 5–18 years from the Australian P-MIC study. Demographics, cost and time for data collection, dropout rates, and inconsistent responses were used to assess Aim 1. Participant-reported difficulty and completion time were used to assess Aim 2. Subgroup analyses included child age, report type (self/proxy), sample recruitment pathway (hospital/online), and online panel sample type (general population/condition groups). Results: Overall, 5945 P-MIC participants aged 5–18 years completed an initial survey, of these, 2346 also completed the follow-up survey (39.5% response rate). Compared with online panel recruitment, hospital recruitment was more costly and time-consuming and had higher follow-up completion (33.5% versus 80.4%) (Aim 1). Data were of similar good quality (based on inconsistent responses) for both recruitment pathways (Aim 1). Participants completed each instrument in <3 min, on average, and >70% reported each instrument as easy to complete (Aim 2). Conclusions: The Australian P-MIC study was able to collect good-quality data using both online panel and hospital recruitment pathways. All instruments were acceptable and feasible to children and their caregivers. [ABSTRACT FROM AUTHOR]
- Subjects :
- CAREGIVER attitudes
PILOT projects
HUMAN research subjects
TIME
SELF-evaluation
PATIENT selection
PATIENTS' attitudes
CONTENT mining
SURVEYS
COMPARATIVE studies
PSYCHOMETRICS
QUALITY of life
QUESTIONNAIRES
PSYCHOLOGY of caregivers
RESEARCH funding
COST analysis
DESCRIPTIVE statistics
SOCIODEMOGRAPHIC factors
DATA analysis software
MEDICAL research
PROXY
LONGITUDINAL method
CHILDREN
ADOLESCENCE
Subjects
Details
- Language :
- English
- ISSN :
- 22279067
- Volume :
- 10
- Issue :
- 10
- Database :
- Complementary Index
- Journal :
- Children
- Publication Type :
- Academic Journal
- Accession number :
- 173265054
- Full Text :
- https://doi.org/10.3390/children10101604