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Stroke survivors' preferences on assessing patient-reported outcome measures.

Authors :
Schmidt, Richard
Geisler, Daniela
Urban, Daniela
Pries, Rebecca
Franzisket, Christina
Voigt, Christian
Ivanova, Galina
Neumuth, Thomas
Classen, Joseph
Wagner, Markus
Michalski, Dominik
Source :
Journal of Patient-Reported Outcomes; 11/30/2023, Vol. 7 Issue 1, p1-10, 10p
Publication Year :
2023

Abstract

Background: To assess quality of life and unmet needs after stroke, patient-reported outcome measures (PROMs) have gained increasing attention. However, patients' perspectives on assessing PROMs remain unclear, potentially hindering implementation into clinical practice. Therefore, this study explored patients' preferences on assessing PROMs after ischemic stroke. Methods: A paper-based questionnaire was sent to stroke survivors treated at the Department of Neurology, University of Leipzig, Germany. Health-related quality of life (HRQoL, EQ-5D-5L) and preferences regarding different aspects of data collection to assess PROMs were investigated and linked to socio-demographic and medical characteristics. Results: 158 persons were contacted and 80 replies were subsequently analyzed. Mean age was 70.16 years and mean HRQoL was 68.79 (visual analogue scale with a theoretical maximum of 100). Participants showed positive attitudes towards PROMs as they saw potential to improve care of other patients (n = 66/79; 83.54%) or to improve their own situation (n = 53/74; 71.62%). Participants preferred an annual interview after stroke (n = 39/80; 48.75%) and would preferably spend 15–30 min (n = 41/79; 51.90%) to answer a written survey (n = 69/80; 86.25%). The initially treating clinic was preferred as initiator of such surveys (n = 43/79; 54.43%). Stratification revealed that participants with more than 1 h of daily digital media usage preferred email as way of communication. Conclusions: For the first time, this study showed individual preferences on assessing PROMs after ischemic stroke, focusing on the way, time interval, duration, and initiation site of surveys. These insights might help to successfully implement PROMs after stroke and subsequently detect unmet needs and deficits in stroke care. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
25098020
Volume :
7
Issue :
1
Database :
Complementary Index
Journal :
Journal of Patient-Reported Outcomes
Publication Type :
Academic Journal
Accession number :
173926434
Full Text :
https://doi.org/10.1186/s41687-023-00660-1