Back to Search
Start Over
A programme evaluation of 'First Steps': A peer-conceived, developed and led self-management intervention for people after a Parkinson's diagnosis.
- Source :
- Clinical Rehabilitation; Mar2024, Vol. 38 Issue 3, p403-413, 11p
- Publication Year :
- 2024
-
Abstract
- Objective: A diagnosis of Parkinson's often leads to uncertainty about the future and loss of perceived control. Peer support may offer a means to address these concerns and promote self-management. Design: A programme evaluation of the feasibility and potential effects of 'First Steps', utilising a pragmatic step wedge approach. Comparing First Steps (intervention) to (control) conditions. Setting: In the community at four sites in southern England. Participants: Newly diagnosed (≤ 12months) people with Parkinson's. Intervention: First Steps was a 2-day peer-conceived, developed and led intervention to support self-management. Main measures: At 0, 12 and 24 weeks anxiety and depression (Hospital, Anxiety and Depression Scale, HADS), daily functioning (World Health Organisation Disability Assessment Schedule, WHODAS), physical activity, quality of life (EQ5D), carer strain and service utilisation were assessed. Results: Between February 2018 and July 2019, 36 participants were enrolled into intervention and 21 to control conditions, all were included in statistical analysis. Lost to follow up was n = 1 (intervention) and n = 1 adverse event was reported (control, unrelated). Of the 36 allocated to the intervention n = 22 participants completed both days of First Steps during the study period. Completion of outcome measures was >95% at 24 weeks. Small effects favouring the intervention were found for HADS (odds ratio (OR) = 2.06, 95% confidence interval (CI) 0.24:17.84), Carer Strain Index (OR = 2.22, 95% CI 0.5:9.76) and vigorous (d = 0.42, 95% CI −0.12:0.97) and total physical activity (d = 0.41, 95% CI −0.13:0.95). EQ5D, WHOSDAS and service utilisation, was similar between groups. Conclusions: First Steps was feasible and safe and we found potential to benefit physical activity, mental health and carer strain. Further research with longer-term follow up is warranted. [ABSTRACT FROM AUTHOR]
- Subjects :
- AFFINITY groups
SERVICES for caregivers
PILOT projects
EVALUATION of human services programs
SOCIAL support
CONFIDENCE intervals
ACADEMIC medical centers
SELF-management (Psychology)
ACTIVITIES of daily living
BURDEN of care
MANN Whitney U Test
HUMAN services programs
PHYSICAL activity
MEDICAL care use
SELF-efficacy
PRE-tests & post-tests
PARKINSON'S disease
COMMUNITY-based social services
MENTAL depression
QUALITY of life
DESCRIPTIVE statistics
QUESTIONNAIRES
CHI-squared test
RESEARCH funding
ANXIETY
ODDS ratio
STATISTICAL sampling
DATA analysis software
Subjects
Details
- Language :
- English
- ISSN :
- 02692155
- Volume :
- 38
- Issue :
- 3
- Database :
- Complementary Index
- Journal :
- Clinical Rehabilitation
- Publication Type :
- Academic Journal
- Accession number :
- 175197230
- Full Text :
- https://doi.org/10.1177/02692155231210969