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Acceptability of automatic referrals to supportive and palliative care by patients living with advanced lung cancer: qualitative interviews and a co-design process.

Authors :
Ahmed, Sadia
Simon, Jessica
Biondo, Patricia
Slobogian, Vanessa
Shirt, Lisa
King, Seema
Paolucci, Alessandra
Pabani, Aliyah
Hao, Desiree
Bossio, Emi
Cross, Ralph
Monds, Tim
Nieuwenhuis, Jane
Sinnarajah, Aynharan
Source :
Research Involvement & Engagement; 4/2/2024, Vol. 10 Issue 1, p1-10, 10p
Publication Year :
2024

Abstract

Purpose: Timely access to supportive and palliative care (PC) remains a challenge. A proposed solution is to trigger an automatic referral process to PC by pre-determined clinical criteria. This study sought to co-design with patients and providers an automatic PC referral process for patients newly diagnosed with stage IV lung cancer. Methods: In Step 1 of this work, nine one on one phone interviews were conducted with advanced lung cancer patients on their perspectives on the acceptability of phone contact by a specialist PC provider triggered by an automatic referral process. Interviews were thematically analysed. Step 2: Patient advisors, healthcare providers (oncologists, nurses from oncology and PC, clinical social worker, psychologist), and researchers were invited to join a working group to provide input on the development and implementation of the automatic referral process. The group met biweekly (virtually) over the course of six months. Results: From interviews, the concept of an automatic referral process was perceived to be acceptable and beneficial for patients. Participants emphasized the need for timely support, access to peer and community resources. Using these findings, the co-design working group identified eligibility criteria for identifying newly diagnosed stage IV lung cancer patients using the cancer centre electronic health record, co-developed a telephone script for specialist PC providers, handouts on supportive care, and interview and survey guides for evaluating the implemented automatic process. Conclusion: A co-design process ensures stakeholders are involved in program development and implementation from the very beginning, to make outputs relevant and acceptable for stage IV lung cancer patients. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
20567529
Volume :
10
Issue :
1
Database :
Complementary Index
Journal :
Research Involvement & Engagement
Publication Type :
Academic Journal
Accession number :
176405676
Full Text :
https://doi.org/10.1186/s40900-024-00568-0