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Filling the gap in service provision. Partners as family carers to people with Parkinson's disease: A Scandinavian perspective.
- Source :
- Chronic Illness; Jun2024, Vol. 20 Issue 2, p258-270, 13p
- Publication Year :
- 2024
-
Abstract
- Objectives: The purpose of this study was to explore the expectations of and experiences with the public healthcare system of domestic partners of people with Parkinson's disease (PD) in Denmark and Norway. Methods: A qualitative exploratory design was applied. The sample consisted of 14 people from Denmark (n = 9) and Norway (n = 5) living with a partner with PD. Semi-structured individual interviews were conducted between June and September 2020, digitally recorded, transcribed verbatim and analysed using a reflexive thematic analysis approach combining inductive and deductive approaches. Results: The main themes were 'negotiating systems of support' and 'balancing being both a partner and a family carer'. Partners take responsibility for the people with whom they live and attempt to fill gaps in the public healthcare system. The most frequently described needs were more information, service coordination as the illness progressed and acknowledgement of the complex role. Discussion: A recommendation for practice is recognition of the complex roles of partners to people with PD and reaching out to both regularly to determine needs. This may enhance the collaboration between partner carers, people with PD and healthcare providers, ensure sustainability of the system and optimise living with PD in the family. [ABSTRACT FROM AUTHOR]
- Subjects :
- CHRONIC diseases & psychology
RESEARCH funding
QUALITATIVE research
MEDICAL care
INTERVIEWING
FAMILY roles
PARKINSON'S disease
DESCRIPTIVE statistics
CAREGIVERS
FAMILY attitudes
THEMATIC analysis
BURDEN of care
RESEARCH
RESEARCH methodology
SCANDINAVIANS
PUBLIC health
MEDICAL needs assessment
WELL-being
Subjects
Details
- Language :
- English
- ISSN :
- 17423953
- Volume :
- 20
- Issue :
- 2
- Database :
- Complementary Index
- Journal :
- Chronic Illness
- Publication Type :
- Academic Journal
- Accession number :
- 177391567
- Full Text :
- https://doi.org/10.1177/17423953231174470