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Management dilemmas in pediatric nephrology: moving from friction to flourishing in "challenging" cases.
- Source :
- Pediatric Nephrology; Nov2024, Vol. 39 Issue 11, p3363-3371, 9p
- Publication Year :
- 2024
-
Abstract
- Background: The circumstances surrounding chronic kidney disease and its impact on families can be complex and difficult to navigate, leading to these cases being labeled "challenging." Case presentation: We present the case of an adolescent with kidney failure due to unremitting systemic illness and multiple complications ultimately resulting in the family's request to forgo dialysis. Medical team members wrestled with meeting the family's needs among internal and external constraints. Conclusion: Past experiences, systemic inequities, differing perspectives, and consequential decision-making within individual belief systems can lead to friction between and among medical team members and families. As pediatric nephrologists, we must shift our focus from the "challenging" patient or family to addressing what is challenging their ability to flourishing. [ABSTRACT FROM AUTHOR]
- Subjects :
- TREATMENT of chronic kidney failure
PATIENTS' families
MEDICAL personnel
SOCIAL determinants of health
PSYCHOLOGICAL distress
MEDICAL case management
CULTURAL competence
PATIENT-family relations
HEMODIALYSIS
BIOETHICS
DECISION making
DECISION making in clinical medicine
CHRONIC kidney failure
PEDIATRICS
FAMILY attitudes
PATIENT refusal of treatment
MEDICAL mistrust
PATIENT decision making
PATIENTS' attitudes
ADOLESCENCE
Subjects
Details
- Language :
- English
- ISSN :
- 0931041X
- Volume :
- 39
- Issue :
- 11
- Database :
- Complementary Index
- Journal :
- Pediatric Nephrology
- Publication Type :
- Academic Journal
- Accession number :
- 179739461
- Full Text :
- https://doi.org/10.1007/s00467-024-06384-8