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Exploring Social Support Experiences of Caregivers of Persons Living With Dementia in Hospice Care.

Authors :
Cho, Hannah
Sefcik, Justine S.
Washington, Karla
Parker Oliver, Debra
Demiris, George
Source :
Journal of Applied Gerontology; Jan2025, Vol. 44 Issue 1, p62-69, 8p
Publication Year :
2025

Abstract

As the number of persons living with dementia (PLWD) enrolling in hospice care rises, caregiver support becomes increasingly crucial. While social support can help buffer caregiver stress, many caregivers report feeling isolated and having unmet needs, highlighting the limited research on this population. This qualitative descriptive study aimed to better understand caregivers' social support during the period when the PLWD is enrolled in hospice care. Analyzing qualitative data from 22 caregivers of PLWD using conventional content analysis, we identified the theme "Variations in Social Connections." This theme encompasses two subthemes: "never completely alone," indicating social support from family, friends, and neighbors, and "disappointed sometimes," reflecting instances when some individuals in the caregivers' lives couldn't provide regular support. These findings underscore the need for individualized interventions, as each caregiver experiences social support uniquely. Future research should consider the variations in social support among caregivers of PLWD to inform caregiving practices effectively. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
07334648
Volume :
44
Issue :
1
Database :
Complementary Index
Journal :
Journal of Applied Gerontology
Publication Type :
Academic Journal
Accession number :
181480291
Full Text :
https://doi.org/10.1177/07334648241275968