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To share or not to share is the question.

Authors :
Chalmers, Donald R.C.
Nicol, Dianne
Otlowski, Margaret F.
Source :
Applied & Translational Genomics; Dec2014, Vol. 3 Issue 4, p116-119, 4p
Publication Year :
2014

Abstract

Data sharing is increasingly becoming an essential component of clinical practice and biomedical research. The debate has shifted from whether or not to exchange data to how best to achieve optimal sharing. This raises new ethical and legal challenges, particularly with regard to consent and privacy. This article discusses recent developments in the formulation of best practice guidelines for data sharing. Particular attention is focused on the Global Alliance for Genomics and Health (GA4GH) draft Framework of Conduct for Data Sharing. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
22120661
Volume :
3
Issue :
4
Database :
Supplemental Index
Journal :
Applied & Translational Genomics
Publication Type :
Academic Journal
Accession number :
100024399
Full Text :
https://doi.org/10.1016/j.atg.2014.09.011