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Living as a Cancer Survivor: A Qualitative Study on the Experiences of Belgian Adolescents and Young Adults (AYAs) after Childhood Cancer.

Authors :
Belpame, Nathalie
Kars, Marijke C.
Deslypere, Eva
Rober, Peter
Van Hecke, Ann
Verhaeghe, Sofie
Source :
Journal of Pediatric Nursing; Nov2019, Vol. 49, pe29-e35, 7p
Publication Year :
2019

Abstract

Insight was sought in how a childhood cancer experience plays a role in daily life of adolescents and young adults (AYA) survivors. A qualitative research in which semi-structured interviews were held with 21 AYA survivors of childhood cancer between the ages of 14 and 25. The AYA survivors were recruited from two pediatric oncology departments of two university hospitals in Belgium. The current situation and behavior of AYA-survivors who have been treated for childhood cancer are covered in 5 categories: The Feeling of Being Different while Aiming for Normalcy in Relationships, Living with Existential Uncertainty, The Conscious Protection of Health, The Attachment to the Parent(s) with Whom the Cancer Experience was Shared, and The Desire to Be Meaningful to Others. The AYA survivors did not feel that their cancer experience dominated their current daily life, yet, the cancer experience had an important impact on their functioning. The findings of the study can be used to optimize holistic psychosocial care of AYA survivors. By starting from the key elements in their current functioning, health care professionals can tailor their support to the way in which AYA survivors have integrated their cancer experience into their everyday lives. • Dealing with the late effects of cancer influences the AYA survivor's functioning. • Survivorship issues do not interfere with the AYA's feeling of progression in life. • Health practitioners need insight in the self-reported experiences of AYA survivors. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
08825963
Volume :
49
Database :
Supplemental Index
Journal :
Journal of Pediatric Nursing
Publication Type :
Academic Journal
Accession number :
140957507
Full Text :
https://doi.org/10.1016/j.pedn.2019.07.015