Palliative and End-of-Life Care for Infants and Their Families in the NICU: Building a Program of Research.

• Infants admitted to the NICU may be at risk for high symptom burden and potential suffering. • A variety of factors contribute to the quality of the palliative and EOL care experience for infants, families, and providers. • Respiratory distress, agitation, pain, and lethargy are distressing symptoms for parents to witness. [ABSTRACT FROM AUTHOR]