Health-Related Quality of Life Issues of Patients Affected by Desmoid-Type Fibromatosis; Experiences from Two Countries.

B Background: b Desmoid-type fibromatosis (DTF) is a rare, non-metastasising soft tissue tumour, which by local growth can significantly impact health related quality of life (HRQL). B Conclusions: b Patients affected by DTF experience psychological issues regarding the unpredictable tumour growth behaviour. [Extracted from the article]