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Development of co‐designed resources to provide guidance for people living with dementia and their carers on medication management during hospitalisation.
Development of co‐designed resources to provide guidance for people living with dementia and their carers on medication management during hospitalisation.
- Source :
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association; Dec2023 Supplement 19, Vol. 19, p1-2, 2p
- Publication Year :
- 2023
-
Abstract
- Background: People with dementia are more likely to experience medication‐related harm than people without dementia at transitions of care. However, medication management guidance is often not provided to people with dementia and carers during hospitalisation. We aimed to co‐design novel medication management resources for people with dementia and carers during hospitalisation. Method: This is a mixed‐methods study involving five stages: i) generate resource topics by content analysing a scoping review and a previous qualitative study exploring carers' medication management experiences at discharge; ii) develop the first version of the resources; iii) obtain input from dementia expert advisory panels; iv) undertake focus groups with people with dementia, carers, and healthcare professionals; v) complete quantitative analysis of readability, understandability and actionability, and suitability of the resources through validated tools. Focus groups were content analysed to explore participants' perceptions of the resources' topics, content, and layout, and how well they meet their needs. The resources were edited during each stage, a graphic designer modified the layout, and final copies produced. Result: We derived six resource topics including: participating in shared decision‐making; identifying common medications that may affect cognition; and describing hospital processes and the person's role. The advisory panels recommended introducing informed consent and the discharge summary and medications list in the resources. Two focus groups have been conducted with carers (n = 4) and healthcare professionals (n = 3). Participants felt the topics generated would be useful and beneficial. They suggested: modifying the title to appeal to all supporters of someone with dementia (not just formal carers); listing more medications that may affect cognition; and limiting medical terminology. They recommended providing the resources at admission for referral throughout the hospital stay. The resources were of an adequate reading level, understandable, actionable, and suitable. Conclusion: Resources containing information on shared decision‐making, informed consent, medications that may affect cognition, and support to improve involvement in medication decisions would be valuable to people with dementia, carers, and healthcare professionals. The next stages are to conduct user‐testing on how well key information can be located and understood and evaluate participants' knowledge and engagement in shared decision‐making after using the resources. [ABSTRACT FROM AUTHOR]
Details
- Language :
- English
- ISSN :
- 15525260
- Volume :
- 19
- Database :
- Supplemental Index
- Journal :
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association
- Publication Type :
- Academic Journal
- Accession number :
- 174413299
- Full Text :
- https://doi.org/10.1002/alz.079449