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Intervention to Prepare Community Members for the End-of-Life Journey.

Authors :
Mixer, Sandra J.
Smith, Jennifer L.
Brown, Mary Lynn
Lindley, Lisa C.
Source :
Journal of Hospice & Palliative Nursing; Feb2024, Vol. 26 Issue 1, p41-48, 8p
Publication Year :
2024

Abstract

Despite research findings that rural Appalachians prefer to die at home, few people access palliative and hospice care services, and many report limited knowledge about palliative/end-of-life care resources. A community-academic partnership was formed to address this need. Train-the-trainer workshop and materials were co-developed. This study tested the feasibility and cultural acceptability of the training intervention to increase community members' knowledge about palliative/end-oflife care resources for East Tennessee Appalachian people. Community-based participatory research design and culture care theory guided the project, intervention, and research. After engaging in end-of-life training, participants completed a retrospective pretest-posttest survey. Paired samples t tests were used to compare knowledge before and after training. Means and standard deviations were used to report training material usefulness and cultural acceptability. Short-answer qualitative data were analyzed using content analysis. Sixty-six adults completed the survey. Ratings for training materials and cultural/theological acceptability were high. Participant knowledge rankings showed significant improvement after training at the P <.001 level. Qualitative feedback was positive. The training intervention was feasible, culturally acceptable, and effective for increasing East Tennessee Appalachian persons' palliative/end-of-life care knowledge. Community member expertise/collaboration integrated into every stage of the project is the bedrock of cultural acceptability and feasibility. [ABSTRACT FROM AUTHOR]

Details

Language :
English
ISSN :
15222179
Volume :
26
Issue :
1
Database :
Supplemental Index
Journal :
Journal of Hospice & Palliative Nursing
Publication Type :
Academic Journal
Accession number :
175424838
Full Text :
https://doi.org/10.1097/NJH.0000000000000995