Contradições das políticas públicas voltadas para doenças raras: o exemplo do Programa de Tratamento da Osteogênese Imperfeita no SUS.

In this article, the author opines on the examination of the consolidation process of a public health policy in Brazil which is geared to a rare disorder, osteogenesis imperfecta. Topics discussed include implementation of this law is accompanied by many contradictions, related to therapeutic decisions, public health policy, and drafting process and final text of the new law.