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Feasibility of Collecting Multiple Patient-Reported Outcome Measures Alongside the Dutch Arthroplasty Register

Authors :
Tilbury, Claire
Leichtenberg, Claudia S
Kaptein, Bart L
Koster, Lennard A
Verdegaal, Suzan H M
Onstenk, Ron
der Zwaag, Henrike M J van der Linden-van
Krips, Rover
Kaptijn, Herman H
Vehmeijer, Stephan B W
Marijnissen, Willem-Jan C M
Meesters, Jorit J L
van Rooden, Stephanie M
Brand, Ronald
Nelissen, Rob G H H
Gademan, Maaike G J
Vlieland, Thea P M Vliet
Source :
Journal of Patient Experience; August 2020, Vol. 7 Issue: 4 p484-492, 9p
Publication Year :
2020

Abstract

Background: Compliance rates with patient-reported outcome measures (PROMs) collected alongside arthroplasty registries vary in the literature. We described the feasibility of a routinely collected set PROMs alongside the Dutch Arthroplasty Register.Methods: The longitudinal Leiden Orthopaedics Outcomes of OsteoArthritis Study is a multicenter (7 hospitals), observational study including patients undergoing total hip or total knee arthroplasty (THA or TKA). A set of PROMs: Short Form-12, EuroQol 5 Dimensions, Hip/Knee injury and Osteoarthritis Outcome Score, Oxford Hip/Knee Score was collected preoperatively and at 6, 12, 24 months, and every 2 years thereafter. Participation rates and response rates were recorded.Results: Between June 2012 and December 2014, 1796 THA and 1636 TKA patients were invited, of whom 1043 THA (58%; mean age 68 years [standard deviation, SD: 10]) and 970 TKA patients (59%; mean age 71 years [SD 9.5]) participated in the study. At 6 months, 35 THA/38 TKA patients were lost to follow-up. Response rates were 90% for THA (898/1000) and 89% for TKA (827/932) participants. At 1 and 2 years, 8 and 18 THA and 17 and 11 TKA patients were lost to follow-up, respectively. The response rates among those eligible were 87% (866/992) and 84% (812/972) for THA and 84% (771/917) and 83% (756/906) for TKA patients, respectively. The 2-year questionnaire was completed by 78.5% of the included THA patients and by 77.9% of the included TKA patients.Conclusions: About 60% of patients undergoing THA or TKA complete PROMs preoperatively, with more than 80% returning follow-up PROMs. To increase the participation rates, more efforts concerning the initial recruitment of patients are needed.

Details

Language :
English
ISSN :
23743735 and 23743743
Volume :
7
Issue :
4
Database :
Supplemental Index
Journal :
Journal of Patient Experience
Publication Type :
Periodical
Accession number :
ejs54322471
Full Text :
https://doi.org/10.1177/2374373519853166