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The European Registries for Rare Endocrine Conditions (EuRRECa): the use of a core registry for collecting common data elements and clinician and patient reported outcomes
Authors :
Zurita Ana Luisa Priego
Salma Rashid Ali
Jillian Bryce
Martine Cools
Thomas Danne
Olaf M Dekkers
Olaf Hiort
Harshini Katugampola
Agnes Linglart
Irene Netchine
Anna Nordenstrom
Attila Patocs
Alberto M Pereira
Luca Persani
Nicole Reisch
Arelene Smyth
Zdenek Sumnik
Domenica Taruscio
Edward Visser
Natasha Appelman-Dijkstra
Faisal Ahmed
Source :
Endocrine Abstracts
.
Publication Year :
2022
Publisher :
Bioscientifica, 2022.
Details
ISSN :
14796848
Database :
OpenAIRE
Journal :
Endocrine Abstracts
Accession number :
edsair.doi...........10bf7daa5229f488e421ef06fbd390bc
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