PROMIS® and Neuro-QoLTM measures are valid measures of health-related quality of life among patients with familial chylomicronemia syndrome

Authors :: Glenn Phillips
John Devin Peipert
Montserrat Vera-Llonch
David Cella
Rina S. Fox
Source :: Expert Review of Cardiovascular Therapy. 18:231-238
Publication Year :: 2020
Publisher :: Informa UK Limited, 2020.
Abstract: Background: FCS significantly affects health-related quality of life (HRQOL). Legacy patient-reported outcome measures are often not sensitive to FCS’s impact. NIH PROMIS and Neuro-QoL measures may...

Subjects :: Health related quality of life
Gerontology
business.industry
Symptom burden
Outcome measures
General Medicine
030204 cardiovascular system & hematology
Familial Chylomicronemia
Neuro qol
humanities
03 medical and health sciences
0302 clinical medicine
Quality of life (healthcare)
Internal Medicine
Medicine
lipids (amino acids, peptides, and proteins)
030212 general & internal medicine
Cardiology and Cardiovascular Medicine
business

Full Text Access

Tools