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Qualitative Study of Factors Affecting Patient, Caregiver and Physician Preferences for Treatment of Myeloma and Indolent Lymphoma
- Source :
- Patient Preference and Adherence. 14:301-308
- Publication Year :
- 2020
- Publisher :
- Informa UK Limited, 2020.
-
Abstract
- Introduction The number of treatment options for myeloma and indolent lymphoma are expanding at an exponential rate, with few direct head-to-head comparisons on which to base efficacy measures. We sought to understand how patients, their caregivers and physicians weigh treatment characteristics in order to come to a decision on which treatment option to pursue. Methods Patients, their caregivers and physicians were recruited and interviewed until data saturation was reached. A qualitative, thematic analysis was done to identify themes important to each stakeholder. Results We found that, while all three groups valued efficacy the most, the consideration of other secondary characteristics of the treatment, such as cost, toxicity and logistical issues all differed subtly between the different groups. Patients valued minimising cost and toxicity, even at small trade-offs in efficacy. Caregivers and physicians valued efficacy foremost. Conclusion Acknowledging and managing these differences is paramount because they influence shared decision-making and may affect patient outcomes in the short term, as well as their more general well-being in the long term.
- Subjects :
- medicine.medical_specialty
business.industry
Health Policy
05 social sciences
Stakeholder
Medicine (miscellaneous)
Treatment options
Affect (psychology)
Patient preference
Treatment characteristics
0506 political science
Indolent lymphoma
03 medical and health sciences
0302 clinical medicine
Family medicine
050602 political science & public administration
medicine
030212 general & internal medicine
Thematic analysis
business
Pharmacology, Toxicology and Pharmaceutics (miscellaneous)
Social Sciences (miscellaneous)
Qualitative research
Subjects
Details
- ISSN :
- 1177889X
- Volume :
- 14
- Database :
- OpenAIRE
- Journal :
- Patient Preference and Adherence
- Accession number :
- edsair.doi...........58428c022598fab5396ecdf37e18c0ac