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Pachyonychia Congenita Project

Authors :
Frances J.D. Smith
Eli Sprecher
Gail M. Zimmerman
Mary E. Schwartz
Source :
Journal of the Dermatology Nurses’ Association. 5:42-47
Publication Year :
2013
Publisher :
Ovid Technologies (Wolters Kluwer Health), 2013.

Abstract

A rare disease like pachyonychia congenita (PC) poses barriers to the patient, medical professional, and scientist. The patient has challenges connecting to information, the medical professional has challenges connecting to patient experience, and the scientist has challenges connecting to

Details

ISSN :
1945760X
Volume :
5
Database :
OpenAIRE
Journal :
Journal of the Dermatology Nurses’ Association
Accession number :
edsair.doi...........624438944ec7c6d695bd0618c32ff3ba
Full Text :
https://doi.org/10.1097/jdn.0b013e31827d9ed5