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'I Can’t Take off My Shirt or Do My Own Hair'—A Qualitative Investigation of the Symptoms and Impact Experience of Children and Adolescents with Fibrodysplasia Ossificans Progressiva (FOP)

Authors :
Jessica T. Markowitz
Diana Rofail
Gerrit Vandenberg
Jessica Baldasaro
Robert J. Sanchez
Robert J. Pignolo
Richard Keen
Michelle Davis
Patrick Marquis
Source :
Advances in Therapy. 39:2796-2805
Publication Year :
2022
Publisher :
Springer Science and Business Media LLC, 2022.

Details

ISSN :
18658652 and 0741238X
Volume :
39
Database :
OpenAIRE
Journal :
Advances in Therapy
Accession number :
edsair.doi...........9ac8d9b86192eeb9c466ab0385c9457e
Full Text :
https://doi.org/10.1007/s12325-022-02096-3