D02 Biosample access

Background and aim Biosample collection is essential to developing therapeutics for Huntington’s disease. Biosample collections are intended to accelerate progress towards the development of therapeutics that will benefit HD-affected individuals. Available material and access Towards that goal, the longitudinal, code-protected clinical data and renewable and non-renewable biosamples collected from Enroll-HD, Registry-HD, Track-HD, Track-ON, HDClarity participants are made available to any interested researcher working at a recognized research institution through a straightforward qualification process. The wide availability of these resources aims to energize HD research and encourage a broad variety of ideas and projects. Provided that participants have consented to biobanking, their biological samples collected at baseline and each follow-up visit are used to derive non-renewable and renewable materials made available in aliquots.