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Additional file 2 of 10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France
- Publication Year :
- 2021
- Publisher :
- figshare, 2021.
-
Abstract
- Additional file 2: Figure S1. Access to care and referrals. A: Map of the network: RCRD (round)/CERD (triangles) of the network, with inactive centers for entering patients in the CEMARA database in yellow. B: Number of patients with a developmental disorder referred to an AnDDI-Rares RCRD/CERD varied according to the French departments. The map should be analyzed along with supplementary figure 1A. C: Distance necessary to access to an expert consultation in the total population, and for the four diseases of interest (Rubinstein-Taybi, Cornelia de Lange, 22q11 and Williams syndromes). A median of 25.1 km was found (Q1: 6.3 km – Q3: 64.2 km) for the total population
Details
- Database :
- OpenAIRE
- Accession number :
- edsair.doi.dedup.....00c558c5ec118765d79aec6514a9d79e
- Full Text :
- https://doi.org/10.6084/m9.figshare.15110031