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Additional file 2 of 10 years of CEMARA database in the AnDDI-Rares network: a unique resource facilitating research and epidemiology in developmental disorders in France

Authors :
Messiaen, Claude
Racine, Caroline
Khatim, Ahlem
Soussand, Louis
Odent, Sylvie
Lacombe, Didier
Manouvrier, Sylvie
Edery, Patrick
Sigaudy, Sabine
Geneviève, David
Thauvin-Robinet, Christel
Pasquier, Laurent
Petit, Florence
Rossi, Massimiliano
Willems, Marjolaine
Attié-Bitach, Tania
Roux-Levy, Pierre-Henry
Demougeot, Laurent
Slama, Lilia Ben
Landais, Paul
Jannot, Anne-Sophie
Binquet, Christine
Sandrin, Arnaud
Verloes, Alain
Faivre, Laurence
Publication Year :
2021
Publisher :
figshare, 2021.

Abstract

Additional file 2: Figure S1. Access to care and referrals. A: Map of the network: RCRD (round)/CERD (triangles) of the network, with inactive centers for entering patients in the CEMARA database in yellow. B: Number of patients with a developmental disorder referred to an AnDDI-Rares RCRD/CERD varied according to the French departments. The map should be analyzed along with supplementary figure 1A. C: Distance necessary to access to an expert consultation in the total population, and for the four diseases of interest (Rubinstein-Taybi, Cornelia de Lange, 22q11 and Williams syndromes). A median of 25.1 km was found (Q1: 6.3 km – Q3: 64.2 km) for the total population

Details

Database :
OpenAIRE
Accession number :
edsair.doi.dedup.....00c558c5ec118765d79aec6514a9d79e
Full Text :
https://doi.org/10.6084/m9.figshare.15110031