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Rare cancers are not so rare: the rare cancer burden in Europe

Authors :: Gatta, Gemma
Van Der Zwan, Jan Maarten
Casali, Paolo G.
Siesling, Sabine
Dei Tos, Angelo Paolo
Kunkler, Ian
Otter, Renã©e
Licitra, Lisa
Mallone, Sandra
Tavilla, Andrea
Trama, Annalisa
Capocaccia, Riccardo
Hackl, M.
Van Eycken, E.
Schrijvers, D.
Sundseth, H.
Geissler, Jan
Marreaud, S.
Audisio, R.
Mã¤gi, M.
Hedelin, G.
Velten, M.
Launoy, G.
Guizard, A. V.
Bouvier, A. M.
Maynadiã©, M.
Mercier, M.
Buemi, A.
Tretarre, B.
Colonna, M.
Moliniã©, F.
Lacour, B.
Schvartz, C.
Ganry, O.
Grosclaude, P.
Benhamou, E.
Grossgoupil, M.
Coquard, I. R.
Droz, J. P.
Baconnier, S.
Holleczek, B.
Wartenberg, M.
Hehlmann, R.
Tryggvadottir, L.
Deady, S.
Bellã¹, F.
Ferretti, S.
Serraino, D.
Vercelli, M.
Vitarelli, S.
Cirilli, C.
Fusco, M.
Traina, A.
Michiara, M.
Giacomin, A.
Pastore, G.
Tumino, R.
Mangone, L.
Falcini, F.
Senatore, G.
Budroni, M.
Piffer, S.
Crocetti, E.
La Rosa, F.
Contiero, P.
Zambon, P.
Berrino, F.
Casali, P. G.
Gatta, G.
Gronchi, A.
Licitra, L.
Sowe, S.
Trama, A.
Capocaccia, R.
De Angelis, R.
Mallone, S.
Tavilla, A.
Dei Tos, A. P.
Brandes, A. A.
England, K.
Langmark, F.
Rachtan, J.
Mezyk, R.
Zwierko, M.
Bielska-lasota, M.
Slowinski, J.
Miranda, A.
Safaei Diba, Ch
Primic-zakelj, M.
Mateos, A.
Izarzugaza, I.
Marcos-gragera, R.
Sã¡nchez, M. J.
Navarro, C.
Ardanaz, Eva
Galceran, J.
Virizuela-echaburu, J. A.
Martinez-garcia, C.
Melchor, J. M.
Cervantes, A.
Adolfsson, Jan
Lambe, M.
Mã¶ller, T. R.
Ringborg, Ulrik
Jundt, G.
Usel, M.
Frick, H.
Ess, S. M.
Bordoni, A.
Konzelmann, I.
Dehler, S.
Lutz, J. M.
Visser, O.
Otter, R.
Siesling, S.
Van Der Zwan, J. M.
Coebergh, J. W. W.
Schouten, H.
Greenberg, D. C.
Wilkinson, J.
Roche, M.
Verne, J.
Meechan, D.
Lawrence, G.
Coleman, M. P.
Mackay, J.
Gavin, A.
Brewster, D. H.
Kunkler, I.
Steward, J.
Evaluative Epidemiology Unit
Fondazione IRCCS
Comprehensive Cancer Centre North East
University of Twente [Netherlands]
Cancer Research UK Edinburgh Centre [Edinburgh, UK]
University of Edinburgh-MRC Institute of Genetics and Molecular Medicine [Edinburgh] (IGMM)
University of Edinburgh-Medical Research Council-Medical Research Council
Integraal Kankercentrum Noord
National Centre for Epidemiology, Surveillance and Health Promotion
Istituto Superiore di Sanita [Rome]
Fondazione IRCCS Istituto Nazionale dei Tumori
Faculty of Behavioural, Management and Social Sciences
Usel, Massimo
Source :: European Journal of Cancer, European Journal of Cancer, Elsevier, 2011, 47 (17), pp.2493-2511. ⟨10.1016/j.ejca.2011.08.008⟩, European journal of cancer, 47(17), 2493-2511. Elsevier, European Journal of Cancer, Vol. 47, No 17 (2011) pp. 2493-511
Publication Year :: 2011
Publisher :: HAL CCSD, 2011.
Abstract: International audience; PURPOSE: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. MATERIALS AND METHODS: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. RESULTS: Based on the RARECARE definition (incidence

Subjects :: Male
Pediatrics
Cancer Research
Survival
Rare cancers
Europe
MESH: Registries
0302 clinical medicine
MESH: Aged, 80 and over
Rare Diseases/epidemiology
Neoplasms
MESH: Child
Prevalence
Cancer registries
MESH: Neoplasms
Registries
MESH: Incidence
Child
media_common
Aged, 80 and over
MESH: Aged
0303 health sciences
education.field_of_study
MESH: Middle Aged
Relative survival
Incidence (epidemiology)
Incidence
MESH: Infant, Newborn
IR-78337
Middle Aged
MESH: Infant
3. Good health
Oncology
MESH: Young Adult
030220 oncology & carcinogenesis
Child, Preschool
MESH: Survival Analysis
Female
Adult
MESH: Rare Diseases
medicine.medical_specialty
Adolescent
Population
[SDV.CAN]Life Sciences [q-bio]/Cancer
Rare cancers, Cancer registries, Incidence, Prevalence, Survival
Europe/epidemiology
NO
03 medical and health sciences
Young Adult
Rare Diseases
medicine
media_common.cataloged_instance
Humans
European union
education
Survival analysis
MESH: Prevalence
030304 developmental biology
ddc:613
Aged
MESH: Adolescent
MESH: Humans
business.industry
Public health
MESH: Child, Preschool
Infant, Newborn
Cancer
Infant
MESH: Adult
medicine.disease
Survival Analysis
MESH: Male
Cancer registry
MESH: Europe
business
Neoplasms/epidemiology
MESH: Female

Details

Language :: English
ISSN :: 09598049
Database :: OpenAIRE
Journal :: European Journal of Cancer, European Journal of Cancer, Elsevier, 2011, 47 (17), pp.2493-2511. ⟨10.1016/j.ejca.2011.08.008⟩, European journal of cancer, 47(17), 2493-2511. Elsevier, European Journal of Cancer, Vol. 47, No 17 (2011) pp. 2493-511
Accession number :: edsair.doi.dedup.....0dd0dd5888804f283daeb2edc94ad52c
Full Text :: https://doi.org/10.1016/j.ejca.2011.08.008⟩