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Qualitative Data Sharing: Participant Understanding, Motivation, and Consent
- Source :
- Qualitative Health Research
- Publication Year :
- 2021
- Publisher :
- SAGE Publications, 2021.
-
Abstract
- Expectations to share data underlying studies are increasing, but research on how participants, particularly those in qualitative research, respond to requests for data sharing is limited. We studied research participants’ willingness to, understanding of, and motivations for data sharing. As part of a larger qualitative study on abortion reporting, we conducted interviews with 64 cisgender women in two states in early 2020 and asked for consent to share de-identified data. At the end of interviews, we asked participants to reflect on their motivations for agreeing or declining to share their data. The vast majority of respondents consented to data sharing and reported that helping others was a primary motivation for agreeing to share their data. However, a substantial number of participants showed a limited understanding of the concept of “data sharing.” Additional research is needed on how to improve participants’ understanding of data sharing and thus ensure fully informed consent.
- Subjects :
- SocArXiv|Social and Behavioral Sciences|Sociology|Methodology
Internet privacy
Qualitative property
privacy
moral perspectives
SocArXiv|Social and Behavioral Sciences|Sociology
Humans
SocArXiv|Social and Behavioral Sciences|Sociology|Medical Sociology
Confidentiality
Research Articles
Qualitative Research
Motivation
Informed Consent
Information Dissemination
business.industry
Public Health, Environmental and Occupational Health
bepress|Social and Behavioral Sciences|Sociology|Medicine and Health
confidentiality
ethics
abortion < reproduction
bepress|Social and Behavioral Sciences|Sociology
Data sharing
bepress|Social and Behavioral Sciences|Sociology|Quantitative, Qualitative, Comparative, and Historical Methodologies
qualitative
bepress|Social and Behavioral Sciences
Female
SocArXiv|Social and Behavioral Sciences
Psychology
business
Qualitative research
Subjects
Details
- ISSN :
- 15527557 and 10497323
- Volume :
- 32
- Database :
- OpenAIRE
- Journal :
- Qualitative Health Research
- Accession number :
- edsair.doi.dedup.....102c8af794c0199e48938511c5174d77