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Parents’ Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder—Data from a Norwegian Sample

Authors :
Sigrun Hope
Arvid Heiberg
Ole A. Andreassen
Jarle Johannessen
Jana Strohmaier
Tonje Torske
Marcella Rietschel
Anne Lise Høyland
Srdjan Djurovic
Terje Nærland
Source :
International Journal of Molecular Sciences, Vol 18, Iss 5, p 1078 (2017), International Journal of Molecular Sciences, International Journal of Molecular Sciences; Volume 18; Issue 5; Pages: 1078
Publication Year :
2017
Publisher :
MDPI AG, 2017.

Abstract

Clinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents’ attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to assess parents’ attitudes toward CGT for ASD. Parent members of the Norwegian Autism Society were given a previously untested questionnaire and 1455 answered. Linear regression analyses were conducted to evaluate contribution of parent and child characteristics to attitude statements. Provided it could contribute to a casual explanation of their child’s ASD, 76% would undergo CGT. If it would improve the possibilities for early interventions, 74% were positive to CGT. Between 49–67% agreed that CGT could have a negative impact on health insurance, increase their concern for the child’s future and cause family conflicts. Parents against CGT (9%) were less optimistic regarding positive effects, but not more concerned with negative impacts. The severity of the children’s ASD diagnosis had a weak positive association with parent’s positive attitudes to CGT (p-values range from

Details

Language :
English
ISSN :
14220067
Database :
OpenAIRE
Journal :
International Journal of Molecular Sciences, Vol 18, Iss 5, p 1078 (2017), International Journal of Molecular Sciences, International Journal of Molecular Sciences; Volume 18; Issue 5; Pages: 1078
Accession number :
edsair.doi.dedup.....225039f06ddf69dca17efb15bf409574