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JIA rehabilitation in 2014 and beyond: - a collaborative effort between child, family and health professional
- Source :
- Pediatric Rheumatology Online Journal
- Publication Year :
- 2014
- Publisher :
- BioMed Central, 2014.
-
Abstract
- With the introduction of biologics in pediatric rheumatology the options for effective treatment have increased considerably. Consequently the majority of children with JIA reach a remission in earlier stages of their disease and the impact on joint health, ambulation and functional ability of JIA have changed accordingly. This brings new perspectives for the (allied) health professional in the field of pediatric rheumatology. "Co-creation", family centered care, even family integrated care models are currently explored in this field. Multi-level; composed outcome measures (PRInTO-outcomes), patient rated outcome measures (PROM,s) are increasingly used in research and outcomes research, emphasis on family centered approaches deliver new measures such as the Family Needs Inventory What are the paradigm shifts we will face the coming decade, how does it influence our professional attitudes, skills and knowledge? What will be the added value of the (allied) healthprofessional in the coming decade?
- Subjects :
- medicine.medical_specialty
Pediatrics
Rehabilitation
business.industry
medicine.medical_treatment
Alternative medicine
Invited Speaker Presentation
Integrated care
Family centered care
Rheumatology
Nursing
Paradigm shift
Pediatrics, Perinatology and Child Health
Added value
medicine
Immunology and Allergy
Pediatrics, Perinatology, and Child Health
Functional ability
Outcomes research
business
Subjects
Details
- Language :
- English
- ISSN :
- 15460096
- Volume :
- 12
- Issue :
- Suppl 1
- Database :
- OpenAIRE
- Journal :
- Pediatric Rheumatology Online Journal
- Accession number :
- edsair.doi.dedup.....2466d7e6cbb7ab1fb263346ab9a7ab25