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JIA rehabilitation in 2014 and beyond: - a collaborative effort between child, family and health professional

Authors :
Janjaap van der Net
Source :
Pediatric Rheumatology Online Journal
Publication Year :
2014
Publisher :
BioMed Central, 2014.

Abstract

With the introduction of biologics in pediatric rheumatology the options for effective treatment have increased considerably. Consequently the majority of children with JIA reach a remission in earlier stages of their disease and the impact on joint health, ambulation and functional ability of JIA have changed accordingly. This brings new perspectives for the (allied) health professional in the field of pediatric rheumatology. "Co-creation", family centered care, even family integrated care models are currently explored in this field. Multi-level; composed outcome measures (PRInTO-outcomes), patient rated outcome measures (PROM,s) are increasingly used in research and outcomes research, emphasis on family centered approaches deliver new measures such as the Family Needs Inventory What are the paradigm shifts we will face the coming decade, how does it influence our professional attitudes, skills and knowledge? What will be the added value of the (allied) healthprofessional in the coming decade?

Details

Language :
English
ISSN :
15460096
Volume :
12
Issue :
Suppl 1
Database :
OpenAIRE
Journal :
Pediatric Rheumatology Online Journal
Accession number :
edsair.doi.dedup.....2466d7e6cbb7ab1fb263346ab9a7ab25