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Development of an international standard set of outcome measures for patients with venous thromboembolism: an International Consortium for Health Outcomes Measurement consensus recommendation

Authors :
Adam M Gwozdz
Cindy M M de Jong
Luz Sousa Fialho
Theerawich Likitabhorn
Frieda Sossi
Paula Blancarte Jaber
Anette Arbjerg Højen
Juan I Arcelus
William R Auger
Cihan Ay
Stefano Barco
Marcelo B Gazzana
Julie Bayley
Laurent Bertoletti
Arina ten Cate-Hoek
Alexander T Cohen
Jean M Connors
Jean-Philippe Galanaud
Nicos Labropoulos
Nicole Langlois
Mark H Meissner
Simon Noble
Esther J Nossent
Paula Ponce de León Lovatón
Helia Robert-Ebadi
Rachel P Rosovsky
Noa Smolenaars
Mark Toshner
Cécile Tromeur
Kang-Ling Wang
Eli Westerlund
Kerstin de Wit
Stephen A Black
Frederikus A Klok
Toshner, Mark [0000-0002-3969-6143]
Apollo - University of Cambridge Repository
Source :
Gwozdz, A M, de Jong, C M M, Fialho, L S, Likitabhorn, T, Sossi, F, Jaber, P B, Højen, A A, Arcelus, J I, Auger, W R, Ay, C, Barco, S, Gazzana, M B, Bayley, J, Bertoletti, L, Cate-Hoek, A T, Cohen, A T, Connors, J M, Galanaud, J-P, Labropoulos, N, Langlois, N, Meissner, M H, Noble, S, Nossent, E J, de León Lovatón, P P, Robert-Ebadi, H, Rosovsky, R P, Smolenaars, N, Toshner, M, Tromeur, C C, Wang, K-L, Westerlund, E, de Wit, K, Black, S A & Klok, F A 2022, ' Development of an international standard set of outcome measures for patients with venous thromboembolism : an International Consortium for Health Outcomes Measurement consensus recommendation ', The Lancet Haematology, vol. 9, no. 9, pp. e698-e706 . https://doi.org/10.1016/S2352-3026(22)00215-0, Gwozdz, A M, de Jong, C M M, Fialho, L S, Likitabhorn, T, Sossi, F, Jaber, P B, Højen, A A, Arcelus, J I, Auger, W R, Ay, C, Barco, S, Gazzana, M B, Bayley, J, Bertoletti, L, Cate-Hoek, A T, Cohen, A T, Connors, J M, Galanaud, J P, Labropoulos, N, Langlois, N, Meissner, M H, Noble, S, Nossent, E J, de León Lovatón, P P, Robert-Ebadi, H, Rosovsky, R P, Smolenaars, N, Toshner, M, Tromeur, C, Wang, K L, Westerlund, E, de Wit, K, Black, S A & Klok, F A 2022, ' Development of an international standard set of outcome measures for patients with venous thromboembolism : an International Consortium for Health Outcomes Measurement consensus recommendation ', The Lancet Haematology, vol. 9, no. 9, pp. e698-e706 . https://doi.org/10.1016/S2352-3026(22)00215-0, The Lancet Haematology, 9(9), E698-E706. ELSEVIER SCI LTD
Publication Year :
2022
Publisher :
Elsevier BV, 2022.

Abstract

The International Consortium for Health Outcomes Measurement assembled an international working group of venous thromboembolism experts and patient representatives to develop a standardised minimum set of outcomes and outcome measurements for integration into clinical practice and potentially research to support clinical decision making and benchmarking of quality of care. 15 core outcomes important to patients and health-care professionals were selected and categorised into four domains: patient-reported outcomes, long term consequences of the disease, disease-specific complications, and treatment-related complications. The outcomes and outcome measures were designed to apply to all patients with venous thromboembolism aged 16 years or older. A measurement tool package was selected for inclusion in the core standard set, with a minimum number of items to be measured at predefined timepoints, which capture all core outcomes. Additional measures can be introduced to the user by a cascade opt-in system that allows for further assessment if required. This set of outcomes and measurement tools will facilitate the implementation of the use of patient-centred outcomes in daily practice.

Details

Database :
OpenAIRE
Journal :
Gwozdz, A M, de Jong, C M M, Fialho, L S, Likitabhorn, T, Sossi, F, Jaber, P B, Højen, A A, Arcelus, J I, Auger, W R, Ay, C, Barco, S, Gazzana, M B, Bayley, J, Bertoletti, L, Cate-Hoek, A T, Cohen, A T, Connors, J M, Galanaud, J-P, Labropoulos, N, Langlois, N, Meissner, M H, Noble, S, Nossent, E J, de León Lovatón, P P, Robert-Ebadi, H, Rosovsky, R P, Smolenaars, N, Toshner, M, Tromeur, C C, Wang, K-L, Westerlund, E, de Wit, K, Black, S A & Klok, F A 2022, ' Development of an international standard set of outcome measures for patients with venous thromboembolism : an International Consortium for Health Outcomes Measurement consensus recommendation ', The Lancet Haematology, vol. 9, no. 9, pp. e698-e706 . https://doi.org/10.1016/S2352-3026(22)00215-0, Gwozdz, A M, de Jong, C M M, Fialho, L S, Likitabhorn, T, Sossi, F, Jaber, P B, Højen, A A, Arcelus, J I, Auger, W R, Ay, C, Barco, S, Gazzana, M B, Bayley, J, Bertoletti, L, Cate-Hoek, A T, Cohen, A T, Connors, J M, Galanaud, J P, Labropoulos, N, Langlois, N, Meissner, M H, Noble, S, Nossent, E J, de León Lovatón, P P, Robert-Ebadi, H, Rosovsky, R P, Smolenaars, N, Toshner, M, Tromeur, C, Wang, K L, Westerlund, E, de Wit, K, Black, S A & Klok, F A 2022, ' Development of an international standard set of outcome measures for patients with venous thromboembolism : an International Consortium for Health Outcomes Measurement consensus recommendation ', The Lancet Haematology, vol. 9, no. 9, pp. e698-e706 . https://doi.org/10.1016/S2352-3026(22)00215-0, The Lancet Haematology, 9(9), E698-E706. ELSEVIER SCI LTD
Accession number :
edsair.doi.dedup.....2b7f5b38e35e1833ca2a3b98a8746d41
Full Text :
https://doi.org/10.1016/S2352-3026(22)00215-0