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Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study
- Source :
- Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple sclerosis (Houndmills, Basingstoke, England), vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416, Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple Sclerosis Journal, vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416
- Publication Year :
- 2019
-
Abstract
- Background: In multiple sclerosis (MS), the Expanded Disability Status Scale (EDSS) reflects disease severity. Although parts of the EDSS are dependent on actual walking distance, self-reported statements are often applied. Objectives: The purpose of the present study was, therefore, to compare self-reported walking distance to actual walking distance to outline how this influences EDSS scoring. Methods: MS patients with EDSS 4.0–7.5 ( n = 273) were included from the Danish MS hospitals rehabilitation study ( n = 427). All patients subjectively classified their maximal walking distance according to one of seven categories (>500; 300–499; 200–299; 100–199; 20–99; 5–19; 0–4 m). Subsequently, actual maximal walking distance was assessed and EDSS was determined from both self-reported walking distance (EDSSself-report) and actual walking distance (EDSSactual). Results: In 145 patients (53%), self-reported walking distance was misclassified when compared to the actual walking distance. Misclassification was more frequent in patients using walking aids (64% vs. 44%, p self-report vs EDSSactual) of ⩾0.5 point in 24%. Conclusion: In MS patients with EDSS 4.0–7.5, 53% misclassified their walking distance yielding incorrect EDSS scores in 24%. Therefore, correct EDSS determination must be based on measurement of actual walking distance.
- Subjects :
- Adult
Male
medicine.medical_specialty
Multiple Sclerosis
Denmark
Outcome measurement
Walking
multiple sclerosis
Danish
Disability Evaluation
03 medical and health sciences
Walking distance
0302 clinical medicine
Physical medicine and rehabilitation
Disease severity
medicine
Humans
In patient
030212 general & internal medicine
Rehabilitation Study
Expanded Disability Status Scale
business.industry
Multiple sclerosis
Middle Aged
Multiple Sclerosis, Chronic Progressive
medicine.disease
language.human_language
Neurology
language
Female
Self Report
Neurology (clinical)
EDSS
primary progressive MS
business
030217 neurology & neurosurgery
Subjects
Details
- Language :
- English
- Database :
- OpenAIRE
- Journal :
- Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple sclerosis (Houndmills, Basingstoke, England), vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416, Skjerbæk, A G, Boesen, F, Petersen, T, Rasmussen, P V, Stenager, E, Nørgaard, M, Feys, P, Kjeldgaard-Jørgensen, M L, Hvid, L G & Dalgas, U 2019, ' Can we trust self-reported walking distance when determining EDSS scores in patients with multiple sclerosis? The Danish MS hospitals rehabilitation study ', Multiple Sclerosis Journal, vol. 25, no. 12, pp. 1653-1660 . https://doi.org/10.1177/1352458518795416
- Accession number :
- edsair.doi.dedup.....2d650bd8c0aa8a8527a7895d0c5a055f