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Developing Clinical Cancer Genetics Services in Resource-Limited Countries: The Case of Retinoblastoma in Kenya
- Source :
- Public Health Genomics. 17:221-227
- Publication Year :
- 2014
- Publisher :
- S. Karger AG, 2014.
-
Abstract
- Background/Aims: Clinical cancer genetics is an integral part of cancer control and management, yet its development as an essential medical service has been hindered in many low-and-middle-income countries. We report our experiences in developing a clinical cancer genetics service for retinoblastoma in Kenya. Methods: A genetics task force was created from within the membership of the existing Kenyan National Retinoblastoma Strategy group. The task force engaged in multiple in-person and telephone discussions, delineating experiences, opinions and suggestions for an evidence-based, culturally sensitive retinoblastoma genetics service. Discussions were recorded and thematically categorized to develop a strategy for the design and implementation of a national retinoblastoma clinical genetics service. Results: Discussion among the retinoblastoma genetics task force supported the development of a comprehensive genetics service that rests on 3 pillars: (1) patient and family counseling, (2) community involvement, and (3) medical education. Conclusions: A coordinated national retinoblastoma genetics task force led to the creation of a unique and relevant approach to delivering comprehensive and accurate genetic care to Kenyan retinoblastoma patients. The task force aims to stimulate innovative approaches in cancer genetics research, education and knowledge translation, taking advantage of unique opportunities offered in the African context.
- Subjects :
- Adult
Health Knowledge, Attitudes, Practice
medicine.medical_specialty
animal structures
Genetic counseling
MEDLINE
Developing country
Article
medicine
Humans
Developing Countries
Genetics (clinical)
Genetic testing
Service (business)
Genetics
medicine.diagnostic_test
Genetic Services
Retinoblastoma
business.industry
Eye Neoplasms
Community Participation
Public Health, Environmental and Occupational Health
Cancer
medicine.disease
Kenya
Child, Preschool
Family medicine
Medical genetics
Female
business
Delivery of Health Care
Subjects
Details
- ISSN :
- 16628063 and 16624246
- Volume :
- 17
- Database :
- OpenAIRE
- Journal :
- Public Health Genomics
- Accession number :
- edsair.doi.dedup.....391972aee832701c4fcd69380601b9d2