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Utilisation of early intervention services in young children with hypoplastic left heart syndrome
- Publication Year :
- 2017
-
Abstract
- ObjectiveChildren with hypoplastic left heart syndrome are at a risk for neurodevelopmental delays. Current guidelines recommend systematic evaluation and management of neurodevelopmental outcomes with referral for early intervention services. The Single Ventricle Reconstruction Trial represents the largest cohort of children with hypoplastic left heart syndrome ever assembled. Data on life events and resource utilisation have been collected annually. We sought to determine the type and prevalence of early intervention services used from age 1 to 4 years and factors associated with utilisation of services.MethodsData from 14-month neurodevelopmental assessment and annual medical history forms were used. We assessed the impact of social risk and geographic differences. Fisher exact tests and logistic regression were used to evaluate associations.ResultsAnnual medical history forms were available for 302 of 314 children. Greater than half of the children (52–69%) were not receiving services at any age assessed, whereas 20–32% were receiving two or more therapies each year. Utilisation was significantly lower in year 4 (31%) compared with years 1–3 (with a range from 40 to 48%) (pConclusionDespite significant neurodevelopmental delays, early intervention service utilisation was low in this cohort. As survival has improved for children with hypoplastic left heart syndrome, attention must shift to strategies to optimise developmental outcomes, including enrolment in early intervention when merited.
- Subjects :
- Heart Defects, Congenital
Male
Pediatrics
medicine.medical_specialty
Referral
Heart Ventricles
030204 cardiovascular system & hematology
Neuropsychological Tests
Logistic regression
Article
Hypoplastic left heart syndrome
03 medical and health sciences
symbols.namesake
0302 clinical medicine
Risk Factors
030225 pediatrics
Intervention (counseling)
Early Medical Intervention
medicine
Humans
Medical history
Prospective Studies
Cardiac Surgical Procedures
Prospective cohort study
Child
Fisher's exact test
business.industry
Infant
General Medicine
medicine.disease
Logistic Models
Neurodevelopmental Disorders
Child, Preschool
Pediatrics, Perinatology and Child Health
Cohort
symbols
Female
Cardiology and Cardiovascular Medicine
business
Subjects
Details
- Language :
- English
- ISSN :
- 10479511
- Database :
- OpenAIRE
- Accession number :
- edsair.doi.dedup.....3b7b0a5e3d1bb9dc254366aaff09c707