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Understanding Experiences in Hospice: Exploring Temporal, Occupational, and Relational Dimensions Using Pictor Technique
- Source :
- Qualitative Health Research. 30:1965-1977
- Publication Year :
- 2020
- Publisher :
- SAGE Publications, 2020.
-
Abstract
- Temporality, occupation, and relationships are identified as discrete factors that impact quality of life for individuals at the end of life and those around them. However, scholars, practitioners, and educators require insights regarding whether and how interactions between these factors shape this quality of life. This study is framed by an understanding that meaning is negotiated between people through social interaction and occupational engagement in temporal contexts. We conducted in-depth interviews with 9 patients and 10 family members, incorporating the Pictor visual elicitation technique. Analysis was conducted through an iterative process involving open and selective coding. Findings are described as three main processes: (a) experiences of temporal rupture, (b) diminished significance of clock time, and (c) shifts in occupational priorities. Participants’ perspectives may help carers understand how to foster positive temporal experiences and quality of life for patients and those who love them.
- Subjects :
- 030506 rehabilitation
Palliative care
Hospices
Public Health, Environmental and Occupational Health
Temporality
03 medical and health sciences
Hospice Care
0302 clinical medicine
Quality of life (healthcare)
Caregivers
Nursing
In depth interviews
Quality of Life
Humans
Family
030212 general & internal medicine
Occupational science
0305 other medical science
Psychology
End-of-life care
Subjects
Details
- ISSN :
- 15527557 and 10497323
- Volume :
- 30
- Database :
- OpenAIRE
- Journal :
- Qualitative Health Research
- Accession number :
- edsair.doi.dedup.....49fb241f15896eea803d78145311c4d8