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Ethical, legal, and social issues in the Earth BioGenome Project
- Source :
- Proceedings of the National Academy of Sciences of the United States of America, vol 119, iss 4, Proceedings of the National Academy of Sciences of the United States of America
- Publication Year :
- 2022
- Publisher :
- eScholarship, University of California, 2022.
-
Abstract
- The Earth BioGenome Project (EBP) is an audacious endeavor to obtain whole-genome sequences of representatives from all eukaryotic species on Earth. In addition to the project’s technical and organizational challenges, it also faces complicated ethical, legal, and social issues. This paper, from members of the EBP’s Ethical, Legal, and Social Issues (ELSI) Committee, catalogs these ELSI concerns arising from EBP. These include legal issues, such as sample collection and permitting; the applicability of international treaties, such as the Convention on Biological Diversity and the Nagoya Protocol; intellectual property; sample accessioning; and biosecurity and ethical issues, such as sampling from the territories of Indigenous peoples and local communities, the protection of endangered species, and cross-border collections, among several others. We also comment on the intersection of digital sequence information and data rights. More broadly, this list of ethical, legal, and social issues for large-scale genomic sequencing projects may be useful in the consideration of ethical frameworks for future projects. While we do not—and cannot—provide simple, overarching solutions for all the issues raised here, we conclude our perspective by beginning to chart a path forward for EBP’s work.
- Subjects :
- History
Polymers and Plastics
Evolution
Life on Land
Political Sciences
Social Sciences
Social issues
Industrial and Manufacturing Engineering
EBP
Ethics, Research
Political science
genomics
Genetics
Animals
Humans
The Earth BioGenome Project: The Launch of a Moonshot for Biology
Business and International Management
biodiversity
Ethics
Multidisciplinary
Research
Endangered Species
Human Genome
Genomics
Biological Sciences
ethics
Work (electrical)
ELSI
Biosecurity
Perspective
Engineering ethics
Subjects
Details
- Database :
- OpenAIRE
- Journal :
- Proceedings of the National Academy of Sciences of the United States of America, vol 119, iss 4, Proceedings of the National Academy of Sciences of the United States of America
- Accession number :
- edsair.doi.dedup.....562a636ba9b0678a67015229cc474bfe