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An agenda-setting paper on data sharing platforms: euCanSHare workshop
- Source :
- Open Research Europe, OPEN RESEARCH EUROPE
- Publication Year :
- 2021
- Publisher :
- F1000 Research Limited, 2021.
-
Abstract
- Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.
- Subjects :
- 0301 basic medicine
Open science
Computer science
data infrastructure
incentives
data sharing
Set (abstract data type)
03 medical and health sciences
0302 clinical medicine
open science
Medicine and Health Sciences
030304 developmental biology
0303 health sciences
Articles
Data science
Data sharing
science policy
030104 developmental biology
Incentive
Data access
Cardiovascular and Metabolic Diseases
Sustainability
Science policy
State (computer science)
030217 neurology & neurosurgery
Research Article
Subjects
Details
- Language :
- English
- ISSN :
- 27325121
- Volume :
- 1
- Database :
- OpenAIRE
- Journal :
- Open Research Europe
- Accession number :
- edsair.doi.dedup.....577db0c58275f68143da14ae792bdc29