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Genetic discrimination: introducing the Asian perspective to the debate

Authors :
Chih-hsing Ho
Hannah Kim
Ilhak Lee
Hui Kang
So Yoon Kim
Leonardo D. de Castro
Jonathan Ives
Hub Zwart
Richard Huxtable
Kazuto Kato
Yann Joly
Calvin W. L. Ho
P S Athira
Source :
npj Genomic Medicine, Vol 6, Iss 1, Pp 1-8 (2021), NPJ Genomic Medicine
Publication Year :
2021
Publisher :
Nature Portfolio, 2021.

Abstract

Our article aims to provide a comprehensive portrayal of how seven Asian jurisdictions have sought to address the challenge of genetic discrimination (GD) by presenting an analysis of the relevant legislation, policies, and practices. Based on our findings, policy discussion and action on preventing or mitigating GD have been narrowly framed in terms of employment, insurance, disability, marriage, and family planning. Except for South Korea, none of the jurisdictions we examined has adopted specific legislation to prevent GD. However, for Asia to truly benefit from its recent scientific and technological progress in genomics, we highlight the need for these jurisdictions to engage more proactively with the challenges of GD through a coordinated regulatory and governance mechanism.

Details

Language :
English
ISSN :
20567944
Volume :
6
Issue :
1
Database :
OpenAIRE
Journal :
npj Genomic Medicine
Accession number :
edsair.doi.dedup.....5f4587fb5f17b497125faa71795c4848