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Preferences Regarding Transfer of Patients With Congenital Heart Disease Who Attend Children’s Hospital

Preferences Regarding Transfer of Patients With Congenital Heart Disease Who Attend Children’s Hospital

Authors :
Yasushi Misaki
Ryota Ochiai
Koichiro Niwa
Isao Shiraishi
Yukitaka Ikeda
Hitoshi Kato
Masahide Kaneko
Source :
Circulation Journal. 83:824-830
Publication Year :
2019
Publisher :
Japanese Circulation Society, 2019.

Abstract

Background The aim of this study was to determine preferences regarding transfer of patients with congenital heart disease (CHD) attending a children's hospital in Japan and related factors. Methods and Results: We conducted a self-administered questionnaire survey with CHD patients >15 years of age treated at the pediatric cardiology outpatient clinic of a children's hospital. Logistic regression analysis was used to identify factors related to patient preferences regarding the transfer. One hundred and eleven of the 122 patients given a questionnaire provided valid responses (valid response rate, 91.0%). Sixty-six subjects (64.9%) reported "not being told anything specific" by their physicians about the transfer from the children's hospital, and 72 (59.5%) stated that they "wished to continue attending the children's hospital". Visiting outpatient clinic with parents (OR, 11.00; 95% CI: 2.01-60.97), having low uncertainty about continuing to attend the children's hospital (OR, 0.95; 95% CI: 0.92-0.98), and having high uncertainty about leaving the current physician (OR, 1.04; 95% CI: 1.01-1.07) were significantly related to the patient's wish to continue to attend the children's hospital. Conclusions There is a need to improve patient education regarding the opportunities for transfer, and to develop a systematic transition program for children's hospitals and aligned specialized adult CHD centers.

Details

ISSN :
13474820 and 13469843
Volume :
83
Database :
OpenAIRE
Journal :
Circulation Journal
Accession number :
edsair.doi.dedup.....6b4460acb6dc1ef66a941f9556664c50
Full Text :
https://doi.org/10.1253/circj.cj-18-1144