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Patient Stories Can Make a Difference in Patient-Centered Research Design
- Source :
- Journal of Patient Experience, Vol 7 (2020), Journal of Patient Experience
- Publication Year :
- 2020
- Publisher :
- SAGE Publishing, 2020.
-
Abstract
- Amid increasing interest in improving the patient-centeredness of research, new forms of engagement are emerging that enable researchers to get input from community members on research goals, methods, and implementation. This input often includes stories, which are useful for understanding lived experiences of illness and encounters with health care organizations, and for locating these experiences within larger meta-narratives of specific communities. We analyzed the stories in transcripts of 13 Community Engagement Studios and identified 4 major functions that the stories served in the sessions. Major functions included: (1) establishing mutual understanding, (2) adding expansion and depth, (3) characterizing abstract concepts, and (4) providing context for experience, with the latter being the most frequent. We assert that stories can serve to better communicate the complex contexts of patient experiences, helping to align research priorities and research design with community interests, leading to more patient-centered innovations in clinical practice.
- Subjects :
- Research design
Medical education
lcsh:R5-920
Health (social science)
Community engagement
Leadership and Management
030503 health policy & services
Health Policy
community engagement
research design
03 medical and health sciences
0302 clinical medicine
storytelling
patient-centeredness
In patient
030212 general & internal medicine
0305 other medical science
Psychology
lcsh:Medicine (General)
Research Articles
Patient centered
Storytelling
Subjects
Details
- Language :
- English
- ISSN :
- 23743743 and 23743735
- Volume :
- 7
- Database :
- OpenAIRE
- Journal :
- Journal of Patient Experience
- Accession number :
- edsair.doi.dedup.....76312114dc850fcf2213a09039390ae5