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Spanish validation of the telephone assessed Expanded Disability Status Scale and Patient Determined Disease Steps in people with multiple sclerosis
- Source :
- Multiple Sclerosis and Related Disorders. 27:333-339
- Publication Year :
- 2019
- Publisher :
- Elsevier BV, 2019.
-
Abstract
- The Expanded Disability Status Scale (EDSS) and Patient Determined Disease Steps (PDDS) are two of the most widely disability scales used in multiple sclerosis (MS). When physical visits are unavailable, remote evaluation through telephone interview may be helpful. We aimed to translate both scales into Spanish, and to 1) validate the telephone EDSS and PDDS, and 2) explore the association pattern between both telephone questionnaires.103 patients underwent a neurological examination to generate the EDSS and completed the PDDS questionnaire. Telephone questionnaires (EDSS, PDDS) were performed within 15 days. Feasibility and psychometric properties of both telephone questionnaires included internal consistency, acceptability, inter-rater agreement and validity. Test-retest reliability was evaluated in 36 patients.Both scales showed excellent internal consistency and test-retest reliability. The agreement between conventional and telephone assessments in ambulatory impaired patients (EDSS 4.0) was good for EDSS (kappa = 0.72) and excellent for PDDS (kappa = 0.93); fully ambulatory patients (EDSS ≤ 4.0) showed lower values (kappa = 0.24, and 0.54, respectively). Full agreement was higher for telephone PDDS than telephone EDSS (78% vs 44%). Overestimation of disability was more frequent in fully ambulatory patients. Strong correlation was found between telephone questionnaires (rho = 0.88; p 0.001). The pattern of association was not isomorphic, but a PDDS cut-off of 3 identified with high accuracy patients with ambulatory impairment.Telephone EDSS and PDDS questionnaires for Spanish patients are valid tools to assess disability status in MS and offer complementary information. Patients with ambulatory impairment are those who benefit the most from a remote assessment.
- Subjects :
- Adult
Male
medicine.medical_specialty
Multiple Sclerosis
Psychometrics
Neurological examination
Interviews as Topic
Disability Evaluation
03 medical and health sciences
0302 clinical medicine
immune system diseases
Surveys and Questionnaires
Internal consistency
medicine
Humans
030212 general & internal medicine
Expanded Disability Status Scale
medicine.diagnostic_test
business.industry
Multiple sclerosis
Reproducibility of Results
General Medicine
Middle Aged
medicine.disease
nervous system diseases
Neurology
Telephone interview
DISEASE STEPS
Spain
Ambulatory
Physical therapy
Female
Patient-reported outcome
Neurology (clinical)
business
030217 neurology & neurosurgery
Subjects
Details
- ISSN :
- 22110348
- Volume :
- 27
- Database :
- OpenAIRE
- Journal :
- Multiple Sclerosis and Related Disorders
- Accession number :
- edsair.doi.dedup.....8850ac8625d8fc62f2117c5cbda3102e