Back to Search
Start Over
The picture talk project: Aboriginal community input on consent for research
The picture talk project: Aboriginal community input on consent for research
- Source :
- BMC Medical Ethics, Vol 20, Iss 1, Pp 1-15 (2019), BMC Medical Ethics
- Publication Year :
- 2019
- Publisher :
- Springer Science and Business Media LLC, 2019.
-
Abstract
- Background The consent and community engagement process for research with Indigenous communities is rarely evaluated. Research protocols are not always collaborative, inclusive or culturally respectful. If participants do not trust or understand the research, selection bias may occur in recruitment, affecting study results potentially denying participants the opportunity to provide more knowledge and greater understanding about their community. Poorly informed consent can also harm the individual participant and the community as a whole. Methods Invited by local Aboriginal community leaders of the Fitzroy Valley, the Kimberley, Western Australia, The Picture Talk project explores the consent process for research. Focus groups of Aboriginal community members were conducted to establish preferences for methods of seeking individual consent. Transcripts were analysed through NVivo10 Qualitative software using grounded theory with inductive and deductive coding. Themes were synthesised with quotes highlighted. Results Focus groups with Aboriginal community members (n = 6 focus groups of 3–7 participants) were facilitated by a Community Navigator as a cultural guide and interpreter and a researcher. Participants were recruited from all main language groups of the Fitzroy Valley – Gooniyandi, Walmajarri, Wangkatjungka, Bunuba and Nikinya. Participants were aged ≥18 years, with 5 female groups and one male group. Themes identified include: Reputation and trust is essential; The Community Navigator is key; Pictures give the words meaning – milli milli versus Pictures; Achieving consensus in circles; Signing for consent; and Research is needed in the Valley. Conclusion Aboriginal communities of the Fitzroy Valley recommend that researchers collaborate with local leaders, develop trust and foster a good reputation in the community prior to research. Local Aboriginal researchers should be employed to provide cultural guidance throughout the research process and interpret local languages especially for elders. Pictures are preferred to written text to explain research information and most prefer to sign for consent. The Fitzroy Valley welcomes research when collaborative and for the benefit of the community. Future research could include exploring how to support young people, promote health screening and improve understanding of medical knowledge.
- Subjects :
- Male
Health Knowledge, Attitudes, Practice
Biomedical Research
Native Hawaiian or Other Pacific Islander
Health (social science)
Yarning
Community
Grounded theory
Consent
0302 clinical medicine
Informed consent
Pictures
030212 general & internal medicine
Health Education
Aboriginal
Qualitative Research
media_common
lcsh:R723-726
Informed Consent
Community engagement
Communication
Health Policy
06 humanities and the arts
Focus Groups
Public relations
16. Peace & justice
Culturally Competent Care
Female
Qualitative Methods
Psychology
Research Article
Reputation
Adult
media_common.quotation_subject
0603 philosophy, ethics and religion
Indigenous
Interviews as Topic
03 medical and health sciences
Health Services, Indigenous
Humans
business.industry
Research
Western Australia
15. Life on land
Focus group
Review Literature as Topic
Issues, ethics and legal aspects
Philosophy of medicine
060301 applied ethics
lcsh:Medical philosophy. Medical ethics
business
Delivery of Health Care
Qualitative research
Subjects
Details
- ISSN :
- 14726939
- Volume :
- 20
- Database :
- OpenAIRE
- Journal :
- BMC Medical Ethics
- Accession number :
- edsair.doi.dedup.....b12d118bd3048416dae766ef66a7527f
- Full Text :
- https://doi.org/10.1186/s12910-019-0349-y