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Definition, aims, and implementation of GA [sup] 2 LEN/HAEi Angioedema Centers of Reference and Excellence

Authors :
Kemal Özyurt
Teresa Caballero
Aharon Kessel
Andrew J. MacGinnitie
Solange Oliveira Rodrigues Valle
Anthony J. Castaldo
Markus Magerl
Regis A. Campos
Adam Reich
Heike Röckmann-Helmbach
R. Y. Meshkova
Mario Sánchez-Borges
Richard G. Gower
Anna Zalewska-Janowska
Daria Fomina
Célia Costa
Allen P. Kaplan
Marc A. Riedl
Naoko Inomata
Avner Reshef
Alejandro Malbrán
Aurélie Du-Thanh
N. Prior
Hilary Longhurst
Margarida Gonçalo
Kiran Godse
Rosana Câmara Agondi
Andreas Kleinheinz
Inmaculada Martinez-Saguer
Mona Al-Ahmad
Thilo Jakob
Luis Felipe Ensina
José Ignacio Larco Sousa
Anna Tagka
Chikako Nishigori
Nicola Wagner
Hye Ryun Kang
Michael Makris
Nicholas Brodszki
Ricardo Dario Zwiener
Jan Nicolay
Alicja Kasperska-Zając
Iris V Medina
Ignacio J. Ansotegui
Marcin Stobiecki
Alejandro Berardi
Danny M. Cohn
Claudio A S Parisi
Angèle Soria
Torsten Zuberbier
Dario O. Josviack
E Serra-Baldrich
Jonathan A. Bernstein
Anette Bygum
Isao Ohsawa
Henriette Farkas
Iman Nasr
Thomas Buttgereit
Jonathan Peter
Carsten Bindslev-Jensen
Paulo Ricardo Criado
Wolfgang Pfützner
Natalia Fili
Silvia Mariel Ferrucci
Petra Staubach
Peter Schmid-Grendelmeier
M. Gotua
Marcus Maurer
Jose Fabiani
Gordon Sussman
A. Marsland
Konrad Bork
Andrea Zanichelli
Simon Francis Thomsen
Isabelle Boccon-Gibod
Mauro Cancian
German D. Ramon
Zuotao Zhao
Nikolaos G. Papadopoulos
Martijn B. A. van Doorn
Andrea Bauer
Kanokvalai Kulthanan
Claudio Fantini
Henrik Balle Boysen
Lilian Varga
Dorota Krasowska
Ana Giménez-Arnau
Werner Aberer
Ivan Cherrez-Ojeda
Roberta F. Criado
Constance H. Katelaris
Martin Metz
Riccardo Asero
Mitja Košnik
Stephen Betschel
M Sendhil Kumaran
Sigurd Broesby-Olsen
Moshe Ben-Shoshan
Rand Arnaout
Regina Treudler
Laurence Bouillet
Natalia Ilina
Maryam Ali Al-Nesf
Emek Kocatürk
Emel Aygören-Pürsün
William R. Lumry
Guillermo Guidos-Fogelbach
Yuxiang Zhi
Mark Gompels
Andac Salman
Christina Weber-Chrysochoou
Michihiro Hide
Young Min Ye
Aslı Gelincik
William B Smith
Timothy J. Craig
Bruce Ritchie
Daniel O. Vázquez
Mojca Bizjak
Atsushi Fukunaga
Ragıp Ertaş
Urs C. Steiner
Faradiba Sarquis Serpa
Farrukh R. Sheikh
Michael Rudenko
Paula J. Busse
Luisa Karla de Paula Arruda
Liangchun Wang
Todor A. Popov
Anete Sevciovic Grumach
Joachim Dissemond
Dorottya Csuka
Ignasi Figueras-Nart
Aleena Banerji
Tıp Fakültesi
Kemal Özyurt / 0000-0002-6913-8310
Vascular Medicine
ACS - Atherosclerosis & ischemic syndromes
Dermatology
Göncü, Özgür Emek Kocatürk (ORCID 0000-0003-2801-0959 & YÖK ID 217219)
Maurer, Marcus
Werner, Aberer
Agondi, Rosana
Al-Ahmad, Mona
Al-Nesf, Maryam Ali
Ansotegui, Ignacio
Arnaout, Rand
Arruda, Luisa Karla
Asero, Riccardo
Aygoeren-Puersue, Emel
Banerji, Aleena
Bauer, Andrea
Ben-Shoshan, Moshe
Berardi, Alejandro
Bernstein, Jonathan A
Betschel, Stephen
Bindslev-Jensen, Carsten
Bizjak, Mojca
Boccon-Gibod, Isabelle
Bork, Konrad
Bouillet, Laurence
Boysen, Henrik Balle
Brodszki, Nicholas
Broesby-Olsen, Sigurd
Busse, Paula
Buttgereit, Thomas
Bygum, Anette
Caballero, Teresa
Campos, Regis A.
Cancian, Mauro
Cherrez-Ojeda, Ivan
Cohn, Danny M.
Costa, Celia
Craig, Timothy
Criado, Paulo Ricardo
Criado, Roberta F.
Csuka, Dorottya
Dissemond, Joachim
Du-Thanh, Aurelie
Ensina, Luis Felipe
Ertaş, Ragıp
Fabiani, Jose E.
Fantini, Claudio
Farkas, Henriette
Ferrucci, Silvia Mariel
Figueras-Nart, Ignasi
Fili, Natalia L.
Fomina, Daria
Fukunaga, Atsushi
Gelincik, Aslı
Gimenez-Arnau, Ana
Godse, Kiran
Gompels, Mark
Goncalo, Margarida
Gotua, Maia
Gower, Richard
Grumach, Anete S
Guidos-Fogelbach, Guillermo
Hide, Michihiro
Ilina, Natalia
Inomata, Naoko
Jakob, Thilo
Josviack, Dario O.
Kang, Hye-Ryun
Kaplan, Allen
Kasperska-Zajac, Alicja
Katelaris, Constance
Kessel, Aharon
Kleinheinz, Andreas
Kosnik, Mitja
Krasowska, Dorota
Kulthanan, Kanokvalai
Kumaran, M. Sendhil
Larco Sousa, Jose Ignacio
Longhurst, Hilary J.
Lumry, William
MacGinnitie, Andrew
Magerl, Markus
Makris, Michael P.
Malbran, Alejandro
Marsland, Alexander
Martinez-Saguer, Inmaculada
Medina, Iris V.
Meshkova, Raisa
Metz, Martin
Nasr, Iman
Nicolay, Jan
Nishigori, Chikako V.
Nishigori, Chikako
Ohsawa, Isao
Özyurt, Kemal
Papadopoulos, Nikolaos G.
Parisi, Claudio A. S.
Peter, Jonathan Grant
Pfuetzner, Wolfgang
Popov, Todor
Prior, Nieves
Ramon, German D.
Reich, Adam
Reshef, Avner
Riedl, Marc A.
Ritchie, Bruce
Rockmann-Helmbach, Heike
Rudenko, Michael
Salman, Andaç
Sanchez-Borges, Mario
Schmid-Grendelmeier, Peter
Serpa, Faradiba S.
Serra-Baldrich, Esther
Sheikh, Farrukh R.
Smith, William
Soria, Angele
Staubach, Petra
Steiner, Urs C.
Stobiecki, Marcin
Sussman, Gordon
Tagka, Anna
Thomsen, Simon Francis
Treudler, Regina
Valle, Solange
van Doorn, Martijn
Varga, Lilian
Vazquez, Daniel O.
Wagner, Nicola
Wang, Liangchun
Weber-Chrysochoou, Christina
Ye, Young-Min
Zalewska-Janowska, Anna
Zanichelli, Andrea
Zhao, Zuotao
Zhi, Yuxiang
Zuberbier, Torsten
Zwiener, Ricardo D.
Castaldo, Anthony
School of Medicine
Source :
Allergy, vol. 75, pp. 1-9, 2020., Allergy: European Journal of Allergy and Clinical Immunology, 75(8):ALL14293. Wiley-Blackwell, Dipòsit Digital de la UB, Universidad de Barcelona, Allergy: European Journal of Allergy and Clinical Immunology, 75(8):All14293. Wiley-Blackwell Publishing Ltd, Maurer, M, Aberer, W, Agondi, R, Al-Ahmad, M, Al-Nesf, M A, Ansotegui, I, Arnaout, R, Arruda, L K, Asero, R, Aygören-Pürsü, E, Banerji, A, Bauer, A, Ben-Shoshan, M, Berardi, A, Bernstein, J A, Betschel, S, Bindslev-Jensen, C, Bizjak, M, Boccon-Gibod, I, Bork, K, Bouillet, L, Boysen, H B, Brodszki, N, Broesby-Olsen, S, Busse, P, Buttgereit, T, Bygum, A, Caballero, T, Campos, R A, Cancian, M, Cherrez-Ojeda, I, Cohn, D M, Costa, C, Craig, T, Criado, P R, Criado, R F, Csuka, D, Dissemond, J, Du-Thanh, A, Ensina, L F, Ertaş, R, Fabiani, J E, Fantini, C, Farkas, H, Ferrucci, S M, Figueras-Nart, I, Fili, N L, Fomina, D, Fukunaga, A, Gelincik, A, Giménez-Arnau, A, Godse, K, Gompels, M, Gonçalo, M, Gotua, M, Gower, R, Grumach, A S, Guidos-Fogelbach, G, Hide, M, Ilina, N, Inomata, N, Jakob, T, Josviack, D O, Kang, H R, Kaplan, A, Kasperska-Zając, A, Katelaris, C, Kessel, A, Kleinheinz, A, Kocatürk, E, Košnik, M, Krasowska, D, Kulthanan, K, Kumaran, M S, Larco Sousa, J I, Longhurst, H J, Lumry, W, MacGinnitie, A, Magerl, M, Makris, M P, Malbrán, A, Marsland, A, Martinez-Saguer, I, Medina, I V, Meshkova, R, Metz, M, Nasr, I, Nicolay, J, Nishigori, C, Ohsawa, I, Özyurt, K, Papadopoulos, N G, Parisi, C A S, Peter, J G, Pfützner, W, Popov, T, Prior, N, Ramon, G D, Reich, A, Reshef, A, Riedl, M A, Ritchie, B, Röckmann-Helmbach, H, Rudenko, M, Salman, A, Sanchez-Borges, M, Schmid-Grendelmeier, P, Serpa, F S, Serra-Baldrich, E, Sheikh, F R, Smith, W, Soria, A, Staubach, P, Steiner, U C, Stobiecki, M, Sussman, G, Tagka, A, Thomsen, S F, Treudler, R, Valle, S, van Doorn, M, Varga, L, Vázquez, D O, Wagner, N, Wang, L, Weber-Chrysochoou, C, Ye, Y M, Zalewska-Janowska, A, Zanichelli, A, Zhao, Z, Zhi, Y, Zuberbier, T, Zwiener, R D & Castaldo, A 2020, ' Definition, aims, and implementation of GA 2 LEN/HAEi Angioedema Centers of Reference and Excellence ', Allergy: European Journal of Allergy and Clinical Immunology, vol. 75, no. 8, 2115-2123 . https://doi.org/10.1111/all.14293, Allergy, ALLERGY, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname
Publication Year :
2020
Publisher :
European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd, 2020.

Abstract

This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations and regional patient advocates, on why we need an Angioedema Center of Reference and Excellence (ACARE) program and network, and on the accreditation and certification process, governance and funding, and on the interaction with other GA2LEN networks of centers of reference and excellence. The protocols, aims, requirements, and provisions related to becoming a certified CARE are based on (a) the experience of the GA2LEN UCARE network and (b) input from angioedema patients, general practitioners, and angioedema specialists.

Details

Language :
English
ISSN :
13989995 and 01054538
Database :
OpenAIRE
Journal :
Allergy, vol. 75, pp. 1-9, 2020., Allergy: European Journal of Allergy and Clinical Immunology, 75(8):ALL14293. Wiley-Blackwell, Dipòsit Digital de la UB, Universidad de Barcelona, Allergy: European Journal of Allergy and Clinical Immunology, 75(8):All14293. Wiley-Blackwell Publishing Ltd, Maurer, M, Aberer, W, Agondi, R, Al-Ahmad, M, Al-Nesf, M A, Ansotegui, I, Arnaout, R, Arruda, L K, Asero, R, Aygören-Pürsü, E, Banerji, A, Bauer, A, Ben-Shoshan, M, Berardi, A, Bernstein, J A, Betschel, S, Bindslev-Jensen, C, Bizjak, M, Boccon-Gibod, I, Bork, K, Bouillet, L, Boysen, H B, Brodszki, N, Broesby-Olsen, S, Busse, P, Buttgereit, T, Bygum, A, Caballero, T, Campos, R A, Cancian, M, Cherrez-Ojeda, I, Cohn, D M, Costa, C, Craig, T, Criado, P R, Criado, R F, Csuka, D, Dissemond, J, Du-Thanh, A, Ensina, L F, Ertaş, R, Fabiani, J E, Fantini, C, Farkas, H, Ferrucci, S M, Figueras-Nart, I, Fili, N L, Fomina, D, Fukunaga, A, Gelincik, A, Giménez-Arnau, A, Godse, K, Gompels, M, Gonçalo, M, Gotua, M, Gower, R, Grumach, A S, Guidos-Fogelbach, G, Hide, M, Ilina, N, Inomata, N, Jakob, T, Josviack, D O, Kang, H R, Kaplan, A, Kasperska-Zając, A, Katelaris, C, Kessel, A, Kleinheinz, A, Kocatürk, E, Košnik, M, Krasowska, D, Kulthanan, K, Kumaran, M S, Larco Sousa, J I, Longhurst, H J, Lumry, W, MacGinnitie, A, Magerl, M, Makris, M P, Malbrán, A, Marsland, A, Martinez-Saguer, I, Medina, I V, Meshkova, R, Metz, M, Nasr, I, Nicolay, J, Nishigori, C, Ohsawa, I, Özyurt, K, Papadopoulos, N G, Parisi, C A S, Peter, J G, Pfützner, W, Popov, T, Prior, N, Ramon, G D, Reich, A, Reshef, A, Riedl, M A, Ritchie, B, Röckmann-Helmbach, H, Rudenko, M, Salman, A, Sanchez-Borges, M, Schmid-Grendelmeier, P, Serpa, F S, Serra-Baldrich, E, Sheikh, F R, Smith, W, Soria, A, Staubach, P, Steiner, U C, Stobiecki, M, Sussman, G, Tagka, A, Thomsen, S F, Treudler, R, Valle, S, van Doorn, M, Varga, L, Vázquez, D O, Wagner, N, Wang, L, Weber-Chrysochoou, C, Ye, Y M, Zalewska-Janowska, A, Zanichelli, A, Zhao, Z, Zhi, Y, Zuberbier, T, Zwiener, R D & Castaldo, A 2020, ' Definition, aims, and implementation of GA 2 LEN/HAEi Angioedema Centers of Reference and Excellence ', Allergy: European Journal of Allergy and Clinical Immunology, vol. 75, no. 8, 2115-2123 . https://doi.org/10.1111/all.14293, Allergy, ALLERGY, r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau, instname
Accession number :
edsair.doi.dedup.....b6b35b441652e0fb1c965df05dd222b2
Full Text :
https://doi.org/10.1111/all.14293