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Definitions and outcome measures for mucous membrane pemphigoid: Recommendations of an international panel of experts

Authors :
Benjamin S. Daniel
Victoria P. Werth
Janet A. Fairley
Valeria Aoki
Michael Hertl
Branka Marinović
Johann W. Bauer
M. Peter Marinkovich
Giuseppe Cianchini
Marcel F. Jonkman
Sarolta Kárpáti
Josep E. Herrero-González
Luca Borradori
Dedee F. Murrell
Russell P. Hall
Philippe Bernard
Donna A. Culton
Soo Chan Kim
David T. Woodley
Stefan Beissert
Jae Hwan Kim
Detlef Zillikens
David P. Fivenson
Cezary Kowalewski
Takashi Hashimoto
Katarzyna Wozniak
Rüdiger Eming
Luis A. Diaz
Kim B. Yancey
Masayuki Amagai
Serge Doan
Catherine Prost
David R. Rubenstein
Sang Eun Lee
Sergei A. Grando
Giovanna Zambruno
Pascal Joly
Eli Sprecher
John J. Zone
Vanessa Venning
Razzaque Ahmed
Leena Bruckner-Tuderman
Neil J. Korman
Frédéric Caux
Service de dermatologie [Avicenne]
Université Paris 13 (UP13)-Assistance publique - Hôpitaux de Paris (AP-HP) (APHP)-Hôpital Avicenne
Department of Dermatology
Westfälische Wilhelms-Universität Münster (WWU)
Universität Bern [Bern]
Immunodermatologie, Cytokines, Cancer - EA 7319 (ICA)
Université de Reims Champagne-Ardenne (URCA)
Dermatology
University of Freiburg [Freiburg]
OSA (XLIM-OSA)
XLIM (XLIM)
Université de Limoges (UNILIM)-Centre National de la Recherche Scientifique (CNRS)-Université de Limoges (UNILIM)-Centre National de la Recherche Scientifique (CNRS)
Service de dermatologie [Rouen]
CHU Rouen
Normandie Université (NU)-Normandie Université (NU)-Université de Rouen Normandie (UNIROUEN)
Normandie Université (NU)
Physiopathologie, Autoimmunité, maladies Neuromusculaires et THErapies Régénératrices (PANTHER)
Université de Rouen Normandie (UNIROUEN)
Normandie Université (NU)-Normandie Université (NU)-Institut National de la Santé et de la Recherche Médicale (INSERM)
Laboratory of Molecular Dermatology and Department of Dermatology
Molecular and Cell Biology Laboratory
IDI-IRCCS, Rome
Service d'ophtalmologie [Hopital Bichat - Paris]
Université Paris Diderot - Paris 7 (UPD7)-AP-HP - Hôpital Bichat - Claude Bernard [Paris]-Assistance publique - Hôpitaux de Paris (AP-HP) (APHP)
Hôpital Avicenne [AP-HP]
Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Université Paris 13 (UP13)
Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Rouen Normandie (UNIROUEN)
Normandie Université (NU)-Normandie Université (NU)
Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-AP-HP - Hôpital Bichat - Claude Bernard [Paris]
Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Université Paris Diderot - Paris 7 (UPD7)
Source :
Journal of The American Academy of Dermatology, Journal of The American Academy of Dermatology, Elsevier, 2015, 72 (1), pp.168-174. ⟨10.1016/j.jaad.2014.08.024⟩, Murrell, Dedee F; Marinovic, Branka; Caux, Frederic; Prost, Catherine; Ahmed, Razzaque; Wozniak, Katarzyna; Amagai, Masayuki; Bauer, Johann; Beissert, Stefan; Borradori, Luca; Culton, Donna; Fairley, Janet A; Fivenson, David; Jonkman, Marcel F; Marinkovich, M Peter; Woodley, David; Zone, John; Aoki, Valeria; Bernard, Philippe; Bruckner-Tuderman, Leena; ... (2015). Definitions and outcome measures for mucous membrane pemphigoid: recommendations of an international panel of experts. Journal of the American Academy of Dermatology, 72(1), pp. 168-174. Elsevier 10.1016/j.jaad.2014.08.024
Publication Year :
2015
Publisher :
Elsevier BV, 2015.

Abstract

International audience; Mucous membrane pemphigoid encompasses a group of autoimmune bullous diseases with a similar phenotype characterized by subepithelial blisters, erosions, and scarring of mucous membranes, skin, or both. Although knowledge about autoimmune bullous disease is increasing, there is often a lack of clear definitions of disease, outcome measures, and therapeutic end points. With clearer definitions and outcome measures, it is possible to directly compare the results and data from various studies using meta-analyses. This consensus statement provides accurate and reproducible definitions for disease extent, activity, outcome measures, end points, and therapeutic response for mucous membrane pemphigoid and proposes a disease extent score, the Mucous Membrane Pemphigoid Disease Area Index.

Details

ISSN :
01909622 and 10976787
Volume :
72
Issue :
1
Database :
OpenAIRE
Journal :
Journal of the American Academy of Dermatology
Accession number :
edsair.doi.dedup.....baf140b9d7932e753befbee71aa5fb0b
Full Text :
https://doi.org/10.1016/j.jaad.2014.08.024