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Health informatics and EHR to support clinical research in the COVID-19 pandemic: an overview
- Source :
- Briefings in Bioinformatics
- Publication Year :
- 2021
- Publisher :
- Oxford University Press (OUP), 2021.
-
Abstract
- The coronavirus disease 2019 (COVID-19) pandemic has clearly shown that major challenges and threats for humankind need to be addressed with global answers and shared decisions. Data and their analytics are crucial components of such decision-making activities. Rather interestingly, one of the most difficult aspects is reusing and sharing of accurate and detailed clinical data collected by Electronic Health Records (EHR), even if these data have a paramount importance. EHR data, in fact, are not only essential for supporting day-by-day activities, but also they can leverage research and support critical decisions about effectiveness of drugs and therapeutic strategies. In this paper, we will concentrate our attention on collaborative data infrastructures to support COVID-19 research and on the open issues of data sharing and data governance that COVID-19 had made emerge. Data interoperability, healthcare processes modelling and representation, shared procedures to deal with different data privacy regulations, and data stewardship and governance are seen as the most important aspects to boost collaborative research. Lessons learned from COVID-19 pandemic can be a strong element to improve international research and our future capability of dealing with fast developing emergencies and needs, which are likely to be more frequent in the future in our connected and intertwined world.
- Subjects :
- Information privacy
Knowledge management
AcademicSubjects/SCI01060
020205 medical informatics
data sharing
COVID-19 pandemic
02 engineering and technology
Health informatics
Data governance
03 medical and health sciences
0302 clinical medicine
Health care
0202 electrical engineering, electronic engineering, information engineering
Electronic Health Records
Humans
030212 general & internal medicine
Pandemics
Molecular Biology
Method Review
SARS-CoV-2
business.industry
Corporate governance
COVID-19
international initiatives
Data sharing
clinical research
Analytics
Electronic Health Record
Stewardship
business
Medical Informatics
Information Systems
Subjects
Details
- ISSN :
- 14774054 and 14675463
- Volume :
- 22
- Database :
- OpenAIRE
- Journal :
- Briefings in Bioinformatics
- Accession number :
- edsair.doi.dedup.....c343d4d54c9c21141c7e40305a791dbc