Testing a model of adaptation in adolescents and young adults (AYA) with spina bifida (SB)

Background Little is known physical health (PH), mental health (MH) and health-related quality of life (HRQOL) adaptation outcomes in AYA with SB, and the factors associated with them. The purpose of this presentation is to 1) describe the PH (functional status [FS], self-management, secondary conditions), MH (depression, overall selfworth, and internal/external behavior problems [IBP, EBP]), and HRQOL outcomes; and 2) delineate the direct and indirect relationships of risk and protective variables in the Ecological Model of Secondary Conditions and Adaptation in SB associated with these outcomes. This model includes SB Context (SES, shunt status and level of lesion [LOL]), neuropsychological risk [NPR], and protective processes (adolescent resilience and family resourcefulness).