The experience and role of partners in helping to meet the support needs of adolescents and young adults with cancer

To explore the experiences and needs of partners who are supporting adolescents and young adults with cancer. The diagnosis of cancer at any age is significant. Uniquely, in adolescents and young adults this is set against the backdrop of early adult development. This is at a time when young people may be embarking on new experiences and the development of romantic relationships is no exception. There is limited evidence of how partners cope during this time and what their role is alongside how the relationship may change over time.An exploratory qualitative study using narrative enquiry.The protocol was approved in February 2018 and data will be collected between May - December 2018. The theoretical approach will incorporate positioning theory by considering the contextual situation of the partner with reference to their stories, including their rights and duties. Two interviews will be undertaken which will be approximately 2 months apart, where participants will be asked to share their stories. They will also be given a diary at the end of the first interview to record their thoughts about their role and relationship. The diary and interview data will be thematically analysed.It is envisaged that the study will culminate in the identification of key themes which will illuminate the experiences, needs and roles of partners of adolescents and young adults with cancer.These findings will inform the development of guidance which will help partners in the future in this area of practice.目的: 探讨支持青少年和青年癌症患者伙伴的经验和需求。任何年龄的癌症诊断都很重要。不同的一点是,在青少年和青年成年人中,这是在成人早期发育的背景下进行的。这段时间,年轻人可能会开始新的经历,恋爱关系的发展也不例外。只有有限的证据表明,伴侣在这段时间是如何应对的,他们的角色是什么,以及随着时间的推移,关系可能会发生什么变化。 设计: 一项探索性质的研究,使用叙述研究法。 方法: 该议定书于2018年2月获得批准,将于2018年5月至12月期间收集数据。该理论方法将结合定位理论,考虑合作伙伴的背景情况,结合他们的故事,包括他们的权利和义务。将进行两次访谈,时间大约相隔2个月,要求参与者分享他们的故事。在第一次面试结束时,他们还会得到一个日记本,记录下他们对自己角色和关系的想法。日记和采访数据将按主题分析。 讨论: 预计这项研究将最终确定关键主题,阐明青少年和青年癌症患者的经验、需要和伙伴的作用。 影响: 这些调查结果将有助于制定指导方针,以便今后在这一实践领域帮助伙伴。.